There are many reasons why you may want a second opinion about your child's inflammatory bowel disease (IBD) diagnosis or treatment plan. For example, perhaps your doctors are not certain of the diagnosis, or the prescribed treatment isn't working as well as everyone had hoped. Many of our patients want to ensure they’re simply on the right track; others have been recommended surgery and are looking for reassurance and guidance if this is the right decision. Seeking a second opinion allows you and your family to feel confident in the diagnosis and treatment of your child's IBD.
How do I get a second opinion from the IBD Center?
To request a second opinion from the IBD Center, please call 617-355-6058. To properly evaluate your child, we'll need some information beforehand, including:
- date of birth:
- parent's name and contact information:
- insurance provider:
Clinical information: If you prefer, our clinical care coordinator can assist you in gathering these records or answer questions you may have when you call for your appointment.
- most recent physical from your primary physician
- most recent pertinent consultation notes (within 1 year)
- growth charts
- endoscopy reports with color images
- biopsy report
- pathology slides (These will be sent to our IBD Center directly from your Gastroenterologist or pathology department where the procedure was done.)
- diagnostic imaging (CT, x-rays, US, MRI, UGI) on a CD or disc
Care coordination to focus on the needs of you and your child
Making the decision to travel for your child's IBD treatment isn't easy; there's insurance to coordinate, travel plans to be made and lots of "what if" questions to be answered. That's why we have a care coordinator dedicated to making your visit as easy as possible.
Our care coordinator will:
- review each case with a nurse or physician before your appointment to make sure you see the right clinicians while you are here
- coordinate appointments with other specialists if necessary
- answer questions about medical documentation needed for your first visit
- review your insurance coverage and take care of any prior authorizations if needed
- provide recommendations on where to stay in Boston if you're traveling for the appointment
Why get a second opinion from Boston Children's?
The IBD Center is a part of Boston Children's Division of Gastroenterology, Hepatology and Nutrition, voted the #1 pediatric gastroenterology department by U.S.News & World Report. With clinicians practicing in over ten locations throughout Massachusetts, care may be closer to your home than you think.
We routinely care for children who come to us for a second opinion about their IBD diagnosis or treatment plan. We also treat many children who are referred here from other hospitals because their symptoms haven't been controlled as well as their doctors hoped.
Our center is staffed by national and international experts in the field of inflammatory bowel disease. These experts include gastroenterologists, surgeons, radiologists and pathologists. We also understand the unique challenges of children living with IBD and the needs of their families. In addition, our team of nurses, dietitians, social workers and other care providers are also available to support you and your family. If you have questions about how your child's diet could be affecting her symptoms, our dietitians and nutritionists are here to answer them. If you're unsure about how to talk to your child's teachers about how treatment will affect her time in school, our social workers can help you map out a plan or speak to the school on your behalf.
Whether it's at Boston Children's, your home, your child's school or somewhere in between, a member of our team is ready to explain all the available options and help you best manage your child's care in any situation.
How do I know if a child needs a second opinion?
Many families look for a second (and even a third or fourth) opinion when researching their child's care. In some cases, a different doctor may come up with a different diagnosis or come up with different treatment options than those that have all ready been suggested.
Seeking the advice and expertise of different pediatric experts can help you feel confident that your child has the right diagnosis and give you the opportunity to learn about all additional treatment options. We know you want the best for your child, and they count on you to seek the best treatment available. Exploring all of your options is the best way to make it happen.