Inflammatory Bowel Disease Center | Patient Stories

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Contact the Inflammatory Bowel Disease Center

  • 1-617-355-6058

Our team of IBD experts deeply cares about the well being of each and every patient and are dedicated to ensuring they live healthy, fulfilling lives with IBD.

We dedicate ourselves to this level of personal, compassionate care because our patients of all ages never cease to inspire us. When children first come to the Boston Children’s IBD Center, their symptoms are often severe, with excruciating pain, frequent bathroom trips and even significant weight loss.

With our help, they overcome their symptoms, learn to manage their condition and go on to lead healthy, happy lives. Learn more about their IBD successes:

Florida teen, Baylar, was struggling with Crohn's disease. Unable to find a pediatric inflammatory bowel disease (IBD) specialist in her home state, she and her family searched the nation for the best Crohn's and colitis center. Their quest led them to Boston Children's Hospital.

Crohn’s Disease Patient Stories

Caring for Christopher, close to home

After eating pizza one day at school, Christopher Padilha became violently ill, experienced great pain and went to the bathroom almost hourly. His sudden lactose intolerance stumped doctors. His family traveled the 45 miles to Boston Children’s and learned he had Crohn’s disease.

Surgery didn't keep Mackenzie down

At 17, Mackenzie Sullivan faced a difficult decision — whether or not to defer college for a year to undergo surgery for Crohn’s disease. Today, she is a happy, healthy college student and her disease is in remission.

Carson Domey for President

After months of baffling local doctors with Carson Domey’s cheek and gum inflammation, his mother brought him to Boston Children’s. IBD Center specialists diagnosed him with orofacial granulomatosis, a rare, chronic inflammatory condition of the mouth associated with Crohn’s disease.

Ulcerative Colitis Patient Stories

Climbing Mountains

At 14, Mark Donohue was a strong athlete, avid outdoorsman and member of a student band. But his struggles with ongoing cramping, pain and, eventually, blood in his stool, led to a diagnosis of ulcerative colitis. Mark found the right treatment at Boston Children’s.

Overcoming IBD Obstacles

Megan Hourican lived with the constant symptom management of ulcerative colitis all through high school. But once she reached college, she realized she was struggling with a losing battle. She made the courageous decision to undergo surgery.

The right team and game plan for Kimberlee

At age 6, Kimberlee Roy experienced such intense stomach pain that she cried during bowel movements. After a three-week hospital stay and setbacks with medication, her family brought her to Boston Children’s, where doctors diagnosed her with ulcerative colitis.

Treating Vaidehi unique condition

At just 3 months old, Vaidehi Moorthy was diagnosed with a rare genetic immune deficiency — chronic granulomatous disease — as well as a difficult-to-treat form of colitis. Her mother sought the experience of the IBD specialists at Boston Children’s.

Very Early Onset IBD Patient Stories

From Bahrain to Boston for very early onset IBD care

The Boabed family traveled halfway around the world from Saudi Arabia to Boston to find answers for their 3-year-old daughter, Gassen. She was diagnosed with very early onset IBD and underwent a life-saving stem cell transplantation procedure at Boston Children’s.

Overcoming an early onset of Crohn’s disease

At 1 year, Felix Hsu shocked his doctors. An endoscopy showed Crohn’s disease, which rarely presents in children before their teens. The Boston Children’s IBD Center expertly took on his care, overseeing everything, including coordinating care when his family moved overseas.

Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337