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There are many ways you can help children and their families get the care they need.
IBD is a chronic condition. Many patients experience periods of remission (when a patient is feeling well and has little to no symptoms of their disease), and also periods where the disease symptoms are very active. These active periods are called Flares. Some symptoms strongly suggest a flare, like bloody diarrhea— others are less specific and can be seen with viruses or other illnesses like nausea, non-bloody diarrhea or fevers.
Flare symptoms are often similar to the symptoms children have when they are first diagnosed with IBD.
It is important to notify your child’s health care team if you notice any of the following symptoms of a disease flare-up.
bloody diarrhea (please call right away)
abdominal pain or cramping (if severe, please call immediately)
ongoing nausea or vomiting (if vomiting bile [greenish fluid] call immediately)
diarrhea (without blood)
continuing weight loss without an explanation
persistent fevers without an explanation
fatigue or feeling tired
joint pain and swelling
coin sized, painful red or black bumps on the arms and/or legs
eye pain or redness
Different people have different symptoms, and symptoms may range from mild to severe. Again, it is important to contact your health care team if you are worried about any of the symptoms listed above.
We created this guide to help illustrate how to better understand and manage IBD flares.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”