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There are many ways you can help children and their families get the care they need.
At Boston Children’s Hospital, our dedicated Home Parenteral Nutrition (HPN) Program offers outpatient visits every Monday afternoon on the 5th floor of the hospital’s Fegan building. We also provide consultations in conjunction as part of the CAIR program every Thursday afternoon on Fegan 3.
To make the most of your appointments with our program, we suggest that you bring the following items with you, as available and relevant:
We are happy to assist with the coordination of comprehensive, home-based services as they pertain to HPN. To be followed by our HPN service, our HPN providers (nurses, nurse practitioners, dietitians, pharmacists and physicians) will meet with you during a thorough, initial consultation in the hospital or in the office. We will make sure you/your child understand and are comfortable with all elements of HPN management. Follow-up visits will be scheduled to ensure that your care is going smoothly. We are also available to assist in between visits for urgent and non-urgent issues. We manage many long-distances families.
For many families seen at other institutions, we have been told that it’s extremely helpful to receive a second opinion regarding their HPN management by our team — even if it’s just once in a while. We are happy to provide second opinion consultations to you/your child and your physician regarding common HPN-related challenges, such as PN associated liver injury, central line infections, poor growth, vascular access, IV iron management, nutritional deficiencies, and dehydration. We have a special interest in caring for children with congenital (inherited) diarrheas that often lead to HPN dependence, and are a national and an international referral center for such cases.
Whether the diagnosis is known or unknown, we often work in collaboration with other Boston Children's programs for second opinion consultations. These programs include surgery, radiology, palliative care, genetics, nephrology, hematology and metabolism. Our staff is able to aid in the coordination of these appointments.
Inpatient consultations are available to help evaluate HPN as an option for families at Boston Children's. We provide family-oriented education to prepare families to go home on HPN.
For families residing outside of the United States, please contact Boston Children's International Health Services, which facilitates the medical review of patient records and appointment scheduling and which provides assistance with customs and immigration, transportation, hotel and housing accommodations.
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