In the Home Parenteral Nutrition Program at Boston Children’s Hospital, we take a family-centered approach to treating infants, children, and adolescents who require intravenous (IV) or parenteral nutrition (PN) and hydration support at home.From the first visit, we make sure that you know what each team member brings to the table, and help you to understand the underlying medical or surgical reasons for why your child needs parenteral nutrition.
What is home parenteral nutrition?
For various reasons, the intestines of some children are unable to digest food and provide the nutrition needed to live and grow. PN is a method of providing this nutrition intravenously through a central or PICC line when a child cannot take food by mouth or by enterally (through a feeding tube). The nutrients bypass the normal digestive system and enter the child directly through a thin tube inserted into a vein. Read more about home parenteral nutrition and Frequently Asked Questions (FAQ).
Our staff will also work closely with your child’s pediatrician and other doctors to ensure the best care possible.
The HPN Program Team
): Clifford Lo, MD,
MPH, PhD; Brittany Tellier, RD, LCN; Jacqueline Riso; Carlotta Hayes; Bram Raphael, MD; Lisa Summers, MD, RD; Kathleen Gura, PharmD, BCNSP; Meghan Dalton, RN, MSN, CPNP; Daniel Kamin, MD
Our mission is to improve the quality of life for children and families while at the same time helping to improve their nutritional status and overall function. Though complex, with proper care management and close collaboration between your child’s care providers (e.g., home nurses, home care resources, pediatrician, etc.), we aim to provide care maximally outside the hospital addressing all of your child’s needs.
Established in 1980, our program is the nation’s leading referral center for children who require intravenous nutrition. We have already taken care of more than 400 infants, children and adolescents from around the world with medical and surgical problems that keep them from taking in nutrition internally.
Our multidisciplinary team brings together experts who specialize in the care of children on IV nutrition, including gastroenterologists, a pediatric nurse coordinator, a pediatric nurse practitioner, an intestinal failure dietitian, and dedicated parenteral nutrition pharmacists.
Because we specialize in the care of children, have long experience in supporting children on parenteral nutrition in a home setting, and can draw on the knowledge of experts across our institution, we can help you access services that address and help to prevent the major complications associated with parenteral nutrition.
Services we provide
We work closely with Boston Children's Center for Advanced Intestinal Rehabilitation (CAIR), Motility and Gastrointestinal Disorders Center, Intestine and Multivisceral Transplant Program, the Dana-Farber/Children’s Hospital Cancer Center, and other centers and programs to offer a comprehensive set of services for children on home parenteral nutrition and their families and caregivers, including:
- Individualized nutrition plans
- Consultation regarding feeding tube placement
- Coordination of nursing and infusion services at home
- Family and patient support and guidance
- Careful nutrition screening for deficiencies and excess
- Screening and treatment for low bone density
- Intravenous iron therapy to reduce or prevent the need for blood transfusions
- Home-based intravenous antibiotics if needed
- Low dose intravenous fat strategy
- Intravenous fish oil emulsion (Omegaven®)
- Ethanol locks
- On-call consultation with a program staff member 24 hours per day, seven days per week
We offer dedicated HPN Program outpatient visits every Monday afternoon on the 5th floor of the hospital’s Fegan building. We also provide consultations in conjunction as part of the CAIR program every Thursday afternoon on Fegan 3.