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In the Home Parenteral Nutrition Program at Boston Children’s Hospital, we take a family-centered approach to treating infants, children, and adolescents who require intravenous (IV) or parenteral nutrition (PN) and hydration support at home.From the first visit, we make sure that you know what each team member brings to the table, and help you to understand the underlying medical or surgical reasons for why your child needs parenteral nutrition.
What is home parenteral nutrition?
For various reasons, the intestines of some children are unable to digest food and provide the nutrition needed to live and grow. PN is a method of providing this nutrition intravenously through a central or PICC line when a child cannot take food by mouth or by enterally (through a feeding tube). The nutrients bypass the normal digestive system and enter the child directly through a thin tube inserted into a vein. Read more about home parenteral nutrition and Frequently Asked Questions (FAQ).
Our staff will also work closely with your child’s pediatrician and other doctors to ensure the best care possible. For a more detailed description about our healthcare staff please click here.
MPH, PhD; Brittany Tellier, RD, LCN; Jacqueline Riso; Carlotta Hayes; Bram Raphael, MD; Lisa Summers, MD, RD; Kathleen Gura, PharmD, BCNSP; Meghan Dalton, RN, MSN, CPNP; Daniel Kamin, MD
Our mission is to improve the quality of life for children and families while at the same time helping to improve their nutritional status and overall function. Though complex, with proper care management and close collaboration between your child’s care providers (e.g., home nurses, home care resources, pediatrician, etc.), we aim to provide care maximally outside the hospital addressing all of your child’s needs.
Established in 1980, our program is the nation’s leading referral center for children who require intravenous nutrition. We have already taken care of more than 400 infants, children and adolescents from around the world with medical and surgical problems that keep them from taking in nutrition internally.
Our multidisciplinary team brings together experts who specialize in the care of children on IV nutrition, including gastroenterologists, a pediatric nurse, 2 pediatric nurse practitioners, an intestinal failure dietitian, and dedicated parenteral nutrition pharmacists.
Because we specialize in the care of children, have long experience in supporting children on parenteral nutrition in a home setting, and can draw on the knowledge of experts across our institution, we can help you access services that address and help to prevent the major complications associated with parenteral nutrition.
We work closely with Boston Children's Center for Advanced Intestinal Rehabilitation (CAIR), Motility and Gastrointestinal Disorders Center, Intestine and Multivisceral Transplant Program, the Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, and other centers and programs to offer a comprehensive set of services for children on home parenteral nutrition and their families and caregivers, including:
We offer dedicated HPN Program outpatient visits every Monday afternoon on the 5th floor of the hospital’s Fegan building. We also provide consultations in conjunction as part of the CAIR program every Thursday afternoon on Fegan 3.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”