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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
Each child needs different tests during the pre-transplant process, but no two appointments are exactly alike. They will differ depending on your child’s health, where he or she is in the transplant process and what information the team needs about his or her health.
Important tips to keep in mind:
Always arrive on time (or better yet, early) for any appointment. Remember, the Longwood area draws a lot of people and a lot of traffic.
Your physicians and nurses, along with the scheduling staff, will often ask you to bring documents with you to appointments like lab results, medical records or x-rays generated outside of Boston Children’s. Make sure you have these materials before you leave for your appointment.
For your first appointment, bring all of your child’s previous medical records from other institutions, including x-rays, ultrasounds, CT scans and blood work.
Bring a copy of your child’s updated immunization record.
Often you can fax this information ahead of time. Speak with the program coordinator or scheduler.
Always keep your insurance information with you.
Appointments leading up to your child's transplant operation can take several hours, especially at the beginning. We promise to keep you informed and engaged throughout.
We will tell you in advance of each appointment what kinds of tests you can expect. Blood draws are very common, as are physical exams and imaging studies. We’ll also tell you how to prepare for these tests. Don’t hesitate to ask any questions.
If you have any questions about your appointment, call us any time at 617-355-6329.
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