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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
Supporting your child through transplant can be frustrating, tiring, surprising and even joyous at times. But it's almost never easy. For that reason, we believe strongly in “support for the supporters.” We encourage you to take advantage of the services provided here at Boston Children's and by regional and national support groups.
It's important for your child to maintain as full an academic and social life as possible throughout the transplant process. We encourage visitors during long hospital stays and offer a transplant-specific Back to School Program to help your child, his peers and teachers make a smooth transition back to life in the classroom. Ask your Coordinator or Child Life Specialist for more information.
The Center for Families helps every family find the information and resources they need to understand their child’s medical condition and take part in their care.
Chaplains at Boston Children’s represent a variety of faiths, including Islam, Judaism, Protestantism and Roman Catholicism. They are available 24 hours a day to offer spiritual and emotional support to your child and family. Sensitive consideration is given to your family’s religious tradition and primary language.
The Pediatric Transplant Center’s Back to School Program, a joint effort between Boston Children’s Hospital Boston and Dana-Farber Cancer Center, provides individualized support for students returning to school after a transplant.
Download the brochure
The program addresses common concerns that children and their families have about returning to the classroom. The Back to School team, consisting of a Child Life specialist and pediatric transplant nurse, develop a personalized visit with the child, family and members of the school system. Programs are customized for the child’s age and development level, the school population and setting.
There are many organizations dedicated to providing information, support and financial help to transplant recipients. We encourage you to get as much information as possible. For information on financial resources, please check out the financial assistance page.
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