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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
Going through the transplantation process requires detailed financial planning. Knowing ahead of time what to expect is an essential part of the process. The majority of insurance companies require prior notification for all transplant services. Some of the charges to expect include the evaluation process, surgery, hospital stay, follow-up care and medications.
Contacting your insurance company ahead of time is one of the most important things you can do in preparation for your child’s transplant. The insurance company will help you understand your individual coverage and benefits based around the transplant. You will be responsible for all co-pays and deductibles after charges have been processed. Assistance is available for families who cannot afford these excess costs.
The Pediatric Transplant Center's dedicated financial coordinator will work with your insurance company to obtain prior authorization for transplantation and will appeal any denials if turned down for the procedure.
Our financial coordinator can also assist you in identifying additional financial resources needed during the process. Assistance is available if you have no insurance or limited benefits for transplantation. The coordinator will also assist you with out-of-pocket expenses, denied services or general financial questions.
Call our financial coordinator, Angela Perry, at 617-355-0137 before your evaluation if you:
Patients undergoing kidney transplantation are automatically eligible for Medicare coverage. For patients who already have private insurance, Medicare becomes primary coverage 30 months post-transplant. Applying for Medicare when this time draws near can help alleviate future financial strain and add assistance.
Medicaid is another option for families with limited resources. Though Medicaid coverage is based on family household income, it is still an option for some families over the income guidelines when transplant coverage is concerned. It will be essential to contact your local welfare office to see what type of Medicaid category you may fall under.
SSI, if you're eligible, can pick up out-of-pocket costs after Medicare payment; we can assist you in the application process and determining your eligibility. The Social Security information line can be reached at 1-800-772-1213 or online at www.socialsecurity.gov.
There are many local and national organizations dedicated to providing information, support and financial assistance to transplant recipients. We encourage you to utilize these resources throughout the transplant process. Please feel free to contact your program’s social worker in the Pediatric Transplant Center directly if you have questions related to these resources.
Note: This list is not an endorsement of services.
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