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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
Our transplant candidates and recipients benefit from the many specialties and services Boston Children's has to offer, such as:
Child Life Services
Child Life Specialists enhance our transplant patients’ emotional, social and cognitive growth during their hospital stay, giving special consideration to each child’s family, culture and stage of development. Our professionals are trained to work in the areas of child development, special education or recreation therapy.
Boston Children’s has an Immunocompromised Host Service (within the Division of Infectious Diseases) that focuses on the infectious disease issues affecting transplant recipients. The infectious disease nurse practitioner or physician meets with each transplant candidate.
The Clinical Nutrition Service at Boston Children’s provides comprehensive nutrition consultation for patients of all ages. Using innovative diagnostic and evaluation techniques, our staff develops appropriate nutrition plans for many of our patients.
Perioperative Transplant Team
This group of professionals is dedicated exclusively to the care of patients having a transplant. Transplant surgeons, operating room nursing staff, anesthesiologists and cardiopulmonary perfusionists work together to provide individualized care to each patient. We are with your child from the time you arrive in the pre-operative waiting area until your child is safely in recovery.
Our pharmacists and technicians are well trained in the unique needs of young transplant patients and work closely with surgeons, physicians and the rest of the multidisciplinary team to develop a medication plan specific to each child.
Because medication is such an important part of life post-transplant, a transplant pharmacist personally meets with each transplant candidate.
Psychiatry and Psychology
Due to the drastic life changes that are part of the transplant process, many patients who have received transplants benefit from the care of a mental health professional. Long-term continuity of mental health care is critical.
Psychiatrists and psychologists at Boston Children’s work with our families right at the outset of the process and as the patient grows toward adulthood, these professionals can assist in the transition of your child’s mental health care.
Each transplant program has a social worker that provides a wide range of services to support the care of patients and families before, during and after the transplant.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”