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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
Heart transplant recipients are instructed to maintain a "heart healthy" diet for the rest of their life. This diet is low in saturated fats, cholesterol, salt and concentrated sweets. The family is educated on this diet over the first several months post-transplant.
There are many drug-drug interactions with the immunosuppression regimen, so caution should be used when giving any new medication. Particularly, drugs metabolized via cytochrome p450 metabolism pathway must be used with caution. Tacrolimus (Prograf, FK506) is metabolized via this pathway and the levels can be dramatically altered.
Examples of medications that can alter the levels include: erythromycin, dilantin and other anti-seizure medications, antifungal agents such as ketoconazole, fluconazole, and itraconazole, as well as calcium channel blockers.
If you must prescribe any of the medications, please contact our office at 617-355-6329 in order to ensure close monitoring of drug levels.
Because of the long-term nephrotoxic effects of tacrolimus, medications that are renally metabolized are used with caution. We advise against the use of all nonsteroidals.
Standard cold preparations that have phenylephrine or pseudophedrine are also avoided.
Because heart transplant patients are immunocomprimised, they should not receive any live vaccines. Immunizations should not be given within three months of transplant or in the midst of a rejection episode.
Immunizations heart transplant recipients should receive:
Most competitive physical activity is allowed six to eight weeks post heart transplant. Once the patient completes a rehabilitation program they are allowed to participate in age-appropriate activities. We generally advise against varsity-level contact sports (e.g. hockey, football).
Screening is extremely important for our heart transplant patients. Being proactive in the search for potential issues is the key. Any sign of heart failure can be a sign of rejection and must be responded to quickly. Please report any suspicious symptoms.
Rare infections (CMV, EBV) can present themselves in the immunosuppresed patient and must be responded to quickly. Because of the risk of post-transplant lymphoproliferative disease (PLTD), careful examination of lymph nodes at each visit is important.
We ask you to keep us informed of any changes in medical condition, any admissions to the hospital, any serious infections and any psychosocial concerns. These may affect the patient's listing and will help us provide the opportunity for successful transplantation.
We would like to be notified of any significant illness, fever (>100.5 degrees), fatigue, chest pain, heart rhythm abnormalities, swelling, abdominal pain, lymphadodenopathy, and excessive diarrhea/vomiting or compliance issues, hospitalizations or recurrent problems.
For urgent matters during off-hours or weekends, please page the Heart Transplant Cardiologist on-call via the page operator at 617-355-6363.
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