Genetics Program Patient Resources

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This page contains links to websites with information about support groups for parents. We hope that you find these sites helpful, but please remember we do not control or endorse the information presented on these websites, nor do these sites endorse the information contained here. Your geneticist or genetic counselor may be able to provide additional resources.

Alliance of Genetic Support Groups
National Down Syndrome Congress
7000 Peachtree-Dunwoody Road, N.E. Building 5, Suite 100
Atlanta, GA 30324
1-800-232-NDSC or (770) 604-9500

National Organization for Rare Disorders, Inc. (NORD)
P.O. Box 8923
New Fairfield, CT 06812
(203) 746-6518

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944