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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
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"We focus on what families want and need—comprehensive evaluation and expert treatment for the child and family as a whole—plus counseling, support and the special services they're going to need."
– Wayne Tworetzky, MD, Director of Fetal Imaging, Senior Associate in Cardiology
About half of babies born with congenital heart defects can be diagnosed prior to birth. Download this checklist of key questions to ask at your next ultrasound appointment.
10 Years and 150 procedures later …
... Our Fetal Cardiology Program is still the innovation leader
On September 13, 2001, Boston Children's Hospital’s Fetal Cardiology Program - part of the #1 ranked Heart Center - made history: a team of Boston Children’s pediatric cardiologists—along with maternal/fetal medicine specialists at Brigham and Women's Hospital—opened a baby’s pinched heart valve while that baby was still in his mother's womb.
This was the first successful fetal cardiac intervention in the world!
Jack Miller, born two months later on November 21, continues to thrive—and, like our program itself—has turned 10 years old!
Without fetal intervention, Jack would have been born with a rare congenital heart defect called hypoplastic left heart syndrome (HLHS). If Jack had been born with this defect, he:
Instead of three or more major procedures, Jack had just one—with a total cost savings to family and insurers of more than $500,000.
Since 2001, we’ve performed more than 150 fetal interventions, and our experienced, skilled clinical team has refined its techniques and process for ever-better outcomes.
Experts at Boston Children’s talk about the latest in diagnosis and treatment options for patients with complex fetal cardiac anomalies.
When an expectant parent is prenatally diagnosed with a congenital heart defect, a surge of complex emotions can occur, including shock, anger and heartbreak. It is very difficult for a family to comprehend and retain the information that they learn during a fetal cardiology consult. Recognizing that parents are not likely in the right frame of mind to fully grasp a lot of information at their initial visit, we have created standardized educational materials. Terra Lafranchi, NP-C, our Fetal Cardiology Coordinator, most recently finished An Expectant Parent’s Guide to Hypoplastic Left Heart Syndrome and Other Single Ventricle Defects. As a result of extraordinary perseverance and valuable input from many amazing clinicians and families, the original simple four page handout on HLHS evolved to become a 55 page comprehensive guide for the short and long-term journey ahead. For more information, please call the Advanced Fetal Care Center at 617-355-6512, or email Terra.Lafranchi@cardio.chboston.org.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”