Esophageal Atresia Treatment Program Patient Stories

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The Doctors: Surgery to Save Baby Born with Esophageal Defect

When Nick and Emily researched the condition called esophageal atresia, they learned Boston Children's Hospital offers a highly advanced surgical technique to help treat the birth defect. By that time, Emily was 31 weeks pregnant, and doctors had warned the baby could come early, so Nick and Emily packed their bags and moved to Boston for the next several months. Watch their whole story below.

Bridging The Gap

Five weeks before his due date, Elliot Cleckler was diagnosed with esophageal atresia and tracheoesophageal fistula (TEF), an abnormal connection between the esophagus and stomach that can interfere with everything from swallowing to eating. After much research Elliot's parents brought him to Boston Children's, the only hospital in the world providing a new and innovative treatment that could cure Elliot for good. 

   

Read their full story here.

Teaming Up for TEF

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Like Lewis and Clark, or Holmes and Watson, Russell Jennings, MD, and Lori McGahan are an amazing team. Working together as doctor and parent advocate, Jennings and McGahan have done tremendous work raising awareness and funds for esophageal atresia/tracheo-esophageal fistula (EA/TEF). Their pairing has improved patient awareness of EA/TEF worldwide, and helped Dr. Jennings better understand the patient experience.

Read about their collaboration.

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The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO

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