Patient Stories

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Contact the Esophageal Atresia Treatment Program

  • 1-617-355-3038
  • International: +1-617-355-5209
  • Locations

At Boston Children’s Hospital, we are dedicated to caring for every child, including those with the most challenging esophageal disorders. Families often travel great distances for treatment by our world-renowned doctors.

Time and time again, these families thank us for treating their children not just as patients but also as people.

While our team of specialists is exceptional, so too are the inspiring patients we treat. We invite you to learn more about some of the special children in our care.

Ryan, the Boy Who Helped Bring the Foker Process to Boston

Ryan was born with a nearly four-inch gap between the top and bottom parts of his esophagus — one of the most severe cases of esophageal atresia our physicians had ever seen. Working with Dr. Russell “Rusty” Jennings, director of our Esophageal Atresia Treatment Program, the family connected with the pioneer of the Foker process, a highly specialized treatment to gradually grow the missing tissue. The two doctors’ partnership not only led to a great outcome for Ryan, but a new skill for Dr. Jennings and another innovative service offered by our hospital. Read more.

From Underweight to Thriving Thanks to Boston Children’s Esophageal Atresia Team

Baby Everly weighed just 4 pounds, 2 ounces when she was diagnosed with esophageal atresia. But Dr. Russell “Rusty” Jennings and his team helped repair the missing portion of her esophagus, helping Everly thrive and hit key milestones: eating solid foods, crawling and saying “Mama” for the first time. Learn more, and watch videos about her care.

Parents Start Fundraiser, Collaborates with Boston Children’s Doctor after Ongoing Care

Brian McGahan faced immediate challenges when he was born, with our team taking him straight to the neonatal intensive care unit (NICU) and soon performing life-saving surgery for his esophageal atresia and tracheoesophageal fistula. While Brian is doing much better, his family has come to rely on Boston Children’s ongoing support and care. To say thank you and help raise awareness, his parents created a fundraiser to benefit our Advanced Fetal Care Center and Esophageal Artesia Treatment Program. They also collaborate with Dr. Russell “Rusty” Jennings on an online support group for families. Learn more about their story.

Make an Appointment

To make an appointment or speak with a member of our team, please call 617-355-3038.

International Patients

For families residing outside of the United States, please call Boston Children's International Health Services at +01-617-355-5209.

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944