At Boston Children’s Hospital, we know how disruptive and frightening seizures and epilepsy can be—not only for your child, but for your whole family. From your first visit, you’ll work with a team of professionals who are committed to supporting you. You may also find the following resources helpful.
Boston Children's Epilepsy Genetics Program
Founded in 2011, our Epilepsy Genetics Program provides comprehensive clinical services, including genetic evaluation and counseling, and engages in prolific research to help children and families with known or suspected genetic epilepsy syndromes. Learn more.
Diagnostic tests for epilepsy
If you are visiting us for an EEG or other diagnostic test, you and your child probably have a lot of questions about what to expect. You may find it helpful to watch this walkthrough of an EEG study together.
You can also get test-specific information on these pages:
General information for patients and families at Boston Children's
Our For Patients and Families website offers information on the wide array of support services available to patients and families at Boston Children’s.
External epilepsy resources
Please note that neither Boston Children’s Hospital nor the Epilepsy Program at Boston Children’s unreservedly endorses all of the information found at the sites listed below.
A number of resources offer information on the ketogenic diet:
The Charlie Foundation is a group dedicated to providing information and support on the ketogenic diet.
Matthew’s Friends is a website written by parents.
The Epilepsy Therapy Project (epilepsy.com) includes information on the ketogenic diet.
The book The Ketogenic Diet: A Treatment for Epilepsy by John Freeman, M.D., Millicent Kelly, R.D. and Jennifer Freeman gives a comprehensive description.
Keto Kid by Deborah Snyder is a book written from a parent’s perspective.