Electrophysiology Service - Special Programs for Patients

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Contact the Electrophysiology Service

  • 1-617-355-6328
  • International: +1-617-355-6328
  • ep@ cardio.chboston.org
  • Request a second opinion.
  • For emergencies, or to contact an electrophysiologist during non-business hours, call the hospital page operator (617-355-6369) and ask to speak to the cardiac electrophysiologist on-call (beeper #3737).

Pediatric Pacemaker/ICD Camp

What is the Pediatric Pacemaker/ICD Camp? 

This special camp provides a unique opportunity for children with implanted pacemakers and defibrillators, many of whom also have congenital heart disease, to experience organized activities and outdoor adventure that they may not be able to at regular camps. 

In the past eight years, camps have been a tremendous success, and continue to be an anticipated highlight for many children. Camp is a magical place where children explore the outdoors, try unique and challenging activities, make new friends, and learn about themselves. For many children, camp is one of the most memorable experiences of their lives.

We strive to foster growth in each camper's self-confidence, sense of responsibility, understanding of others, and decision making skills while helping them enjoy camp's fun and excitement.  Our philosophy of our adventure program is to provide children with a wide array of activities and experiences that supports them in choosing and celebrating their own level of challenge in a safe and supportive community environment. 

We strive to provide the highest quality camp experience for children. Thanks to our generous donors, there is no charge for attending this wonderful camp!

Exciting Activities


Crossroads for Kids has created various programs and activities for campers of all ages to participate in.  Whether you're interested in exploring the ocean life at Duxbury Beach, climbing to the top of a 30-foot-wall, kayaking or canoeing around Keene Pond, or shooting hoops at Cleary's Courts, Camp Wing offers it all to its campers!

The fun doesn't stop after the sun goes down either!  Camp Wing has different evening programs for everyone to attend and enjoy as well!

Facilities

  • 220 Acres of woods and lakes
  • Miles of walking/biking/running trails
  • Large fields for various recreational activities
  • Outdoor swimming pool
  • 60-acre pond for canoeing and kayaking
  • Dining hall that provides and serves 3 hearty, nutritious meals a day
  • Cabins with bunk-beds, electricity and bathroom facilities

Health & Safety

  • Full-time resident nurse onsite
  • Electrophysiology medical personnel
  • On-call physician and emergency medical facility
  • All staff  are CPR/first-aid trained and certified 

Familial Arrhythmia Program

In 2012, clinicians at Boston Children’s, led by Dominic Abrams, MD, and clinicians at Brigham & Women’s, led by Calem MacRae, created the Family Arrhythmia Clinic. At this clinic, individuals and families gain easy and convenient access to a detailed evaluation, discussion and formulation of an integrated family plan.

In a single, comprehensive visit, families are provided the convenience of a “one stop shop.” This all-day, all-inclusive approach was designed to make sure the whole family is looked after and is getting a clear, consistent message. It avoids the problem of having the family visit different centers, and allows us to identify similarities and variability between individuals in the family.

During the day-long meeting, children are typically seen in the morning and undergo specific investigations, while parents and other adult family members are seen in the afternoon at Brigham & Women’s Hospital. At the end of the day, findings are explained to the entire family, and a plan for further tests or treatment is presented. Not only does this strategy make clinical sense by allowing for more comprehensive interpretation of clinical and genetic data, but it also creates important research opportunities.

Learn more about our Family Arrhythmia Treatment Clinic 

Boston Adult Congenital Heart Service Transition Clinic

The Boston Adult Congenital Heart (BACH) service provides 24-hour access to consultation and care. Urgent office visits can be arranged as needed, and routine follow-up appointments are normally on time. Also, we pride ourselves on prompt communication with primary care providers. 

Clinicians in our outpatient service see BACH patients on a routine basis and during emergencies. We run outpatient clinics at Boston Children's Hospital, Boston Children's Hospital at Waltham and Brigham and Women’s Hospital.

We provide comprehensive diagnostic testing, offer complete therapeutic interventions, and coordinate patient care with specialty services within Boston Children's or at one of our affiliated hospitals: Brigham and Women's Hospital, Beth Israel Deaconess Hospital, the Dana Farber Cancer Center and the Mary Horrigan Connors Center for Women’s Health.

Our inpatient service treats, consults, and admits patients to three separate hospitals:
  • Boston Children's Hospital
  • Brigham and Women's Hospital
  • Beth Israel Deaconess Medical Center
The decision regarding which hospital to visit for inpatient care is reevaluated on a regular basis depending on the particular areas of expertise that are needed to best evaluate, diagnose and treat you.

The inpatient team is available 24-hours-a-day, seven days a week and works in conjunction with specialists at each hospital to ensure complete and comprehensive care.

Transition Clinic: Patients who have had chronic childhood illness can benefit from transitioning into an adult program designed specifically to meet their needs. Programs for adults with congenital heart disease differ from the pediatric model in the following ways:
  • Focus on physical aging: Adults are physically aging rather than physically developing. Adults with chronic illness often age at an accelerated rate physically, leading to early development of multiple adult-type co-morbidities. This is addressed in an adult program.
  • Focus on adult-type co-morbidities: These co-morbidities are often different than pediatric chronic issues. For example, the management of diabetes, kidney disease, systemic hypertension, liver disease, psychiatric illness and even heart failure and arrhythmias are different in the adult versus the pediatric patient.
  • Change in hospital visit dynamics: The dynamics of the visit evolve from a doctor-parent-patient triangle to a simple doctor-adult relationship. This, of course, doesn’t mean that family members shouldn’t be included. It just means that the relationship is patient-focused.
  • Focus on problem-solving strategies: As young people develop, they move from using emotional coping strategies to problem-solving strategies. Chronic illness often interferes with this development and has been associated with depression and anxiety. An adult clinic can focus on, and recognize the importance of developing these strategies.
  • Focus on patient education: An adult clinic works to promote a patient’s understanding of his cardiovascular issues, including basic anatomy and physiology of his congenital heart disease and surgical repair. An adult clinic also helps patients be aware of potential problems they may face in the future, with an emphasis on the importance of follow-up, adherence to medical and preventive care. This includes: 
    • knowing which signs and symptoms are important to watch for
    • knowing why certain medications are prescribed and the potential side effects
    • being informed about major generic health issues like sexual health, substance abuse, exercise and nutrition and insurability
Learn more about our Adult Congenital Heart Service programs and services.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944

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