Down Syndrome Program | Your Visit

The Down Syndrome Program at Boston Children’s Hospital offers comprehensive services for parents and children with Down syndrome from newborn to 22 years. We individualize our services to meet the needs of all families as needed.

New baby appointmentsYoung boy with Down syndrome

Families of newborns or young babies are welcome to come in for a "new baby visit" with one of our providers. This is typically a 90 minute appointment where the doctor will review medical history, discuss development, and answer any questions the family may have. We consider this an introductory visit prior to being seen in our Thursday morning clinic for children ages 6 months to 2.5 years old.

Infant-Toddler Down syndrome clinic

The Down Syndrome Program clinic for children from 6 months to 2.5 years provides a comprehensive evaluation using an interdisciplinary team approach. With the exception of audiology, the interdisciplinary team convenes in clinic on Thursday mornings from 8:30 a.m. to 12:30 p.m. Throughout the course of the morning, each child has individual appointments with specialists in developmental pediatrics, a nutrition, physical therapy, speechlanguage pathology with expertise in feeding and swallowing and dentistry. Immediately after seeing the team, the family proceeds to audiology where the child is seen by an audiologist with particular interest and experience in working with children with Down syndrome and also may go to the lab for any needed blood work. Children return for visits approximately every 8 months until around the third birthday

School-age individualized approach

For children ages 3 to 22 years, we offer an individualized approach. We provide a comprehensive developmental pediatrics visit on Tuesdays and Wednesdays on an approximately annual basis or more often as needed. Before scheduling the clinic visit, the Program Coordinator speaks with the family to determine each child's needs and family preferences. We can coordinate same-day appointments for other specialty care such as orthodontics, audiology, cardiology, physical therapy, ophthalmology, nutrition, etc. This is individualized for each family based on travel distances, schedules, and the child's tolerance for multiple visits in one day. We work with each family to make their visits as efficient and accommodating as possible.