Down Syndrome Program | Prenatal Resources

Parents who receive a prenatal diagnosis are given an opportunity to meet and talk with a developmental pediatrician about Down syndrome and ask questions. The Down Syndrome Program works closely with the Advanced Fetal Care Center at Boston Children's Hospital. Please feel free to contact The Down syndrome program coordinator who can provide materials on Down syndrome, make connections and describe support services.

Allen C. Crocker Speaker Series

The Allen C. Crocker Speaker Series provides quality information from experts on a range of topics related to Down syndrome. The series was created to provide information for families but is also relevant to providers and other community members. Talks are presented monthly at Boston Children’s and are open to the public.

The talks are created to provide information for families but are also relevant to providers and other community members. The talks are simultaneously webcast and recorded so can be watched in real-time from anywhere with internet access (allowing remote viewers to participate in questions and answers at the end of the talk) and are archived for future viewing.

View the most recent talk, Navigating a Prenatal Diagnosis of Down Syndrome, with had Linda Zaccagnini, RN, MSN, NNP of the Advanced Fetal Care Center, and Lori Dobson, MS, CGC of Brigham and Women's Hospital.

Additional Down syndrome resources

Understanding a Down Syndrome Diagnosis is a booklet that our Down Syndrome Program shares with expectant parents that visit us for a prenatal visit. It is also sold by Lettercase and was created with input from both the medical and Down syndrome communities, including representatives of ACOG, NSGC, ACMG, NDSC, and NDSS, to provide accurate, up-to-date, and balanced prenatal information about Down syndrome. The booklets cover available health and education services, common medical conditions for babies with Down syndrome, information about pregnancy options, and helpful resources about the condition. The booklets also include a Spanish translation and have been optimized for different reading levels. These booklets are now available for free download in English or Spanish for anyone with iPad, iPhone, ePub or Kindle!

Down Syndrome Pregnancy, Inc, a New Jersey charitable corporation, provides information and support to expectant parents preparing for the birth of a baby with Down syndrome. All of their materials are geared to non-political, honest, compassionate and informative support for those in post-diagnosis pregnancy or waiting until birth for a confirmed diagnosis. Down Syndrome Pregnancy offers a free, downloadable pregnancy book entitled Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome by Nancy McCrea Iannone and Stephanie Hall Meredith.

Massachusetts Down Syndrome Congress has a Parent First Call Program. They have trained, volunteer parents who make themselves and their knowledge available to expectant parents and parents of babies newly diagnosed with Down syndrome. They offer an opportunity to ask questions and share experiences, information on Down syndrome and assistance in locating services. All their services are free and confidential.

National Down Syndrome Congress offers an Expectant Parents Guide, articles and other information for expectant parents.

National Down Syndrome Society offers a video, brochure, and other informative resources for expectant parents.