Down Syndrome Program Overview

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The Down Syndrome Program in the Developmental Medicine Center at Boston Children's Hospital offers multidisciplinary clinical evaluations for people with Down syndrome from birth until the age of 22. With each appointment, we are also able to make referrals and connections with any of the other specialty clinics at Boston Children's.  The Down Syndrome Program is more than a clinic, however. We strive to provide resources, advocacy, and supports to all families, depending on their individual needs.


NEW RESEARCHRoche Clinical Trial

Principal Investigator:  Nicole Baumer MD, MEd

We are currently recruiting children aged 6-11 years with Down syndrome.

Purpose:  We are now conducting a study to look at the safety and potential effectiveness of an investigational medication that may improve learning, memory and performance of daily activities in children with Down syndrome.

What's involved?

  • This study will include 10 office visits and follow-up phone calls (every two weeks) over 9 months.
  • Participants will receive either the study drug or an inactive placebo (granules that contain no medicine).
  • Parents/caregivers will be asked questions about the participant's medical history and behaviors.
  • Participation also includes physical and neurological exams, behavioral and cognitive testing and diagnostic (blood/urine) tests.
  • Participants receive parking, meal vouchers and a gift card.

If you are interested in participating or would like more information, please contact Katherine Pawlowski  857-218-5472



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DS Program Team Members Include:

  • Developmental-Behavioral Pediatrician
  • Neurodevelopmental Disabilities Pediatrician/Child Neurologist 
  • Nurse Practitioner
  • Psychiatrist  
  • Pediatric Psychologist
  • Physical Therapist
  • Speech Pathologist
  • Nutritionist
  • Dentist
  • Orthodontist
  • Audiologist
  • Ophthalmologist
  • Program Coordinator
  • Patient Liaison

Our Vision: All individuals with Down syndrome are physically and emotionally healthy, engaged at their highest capacity in school or vocation, have meaningful family and social relationships, and are valued members of their communities.

Our Mission: To partner with families, interdisciplinary providers, and researchers to evaluate, treat, and investigate medical, cognitive, neurodevelopmental, educational, mental health, behavioral and social needs of individuals with Down syndrome from the time of diagnosis until transition to adult care.



"Families often say their most exciting child is their child with Down Syndrome."

-- Allen Crocker, MD, past director of the Down Syndrome Program at Children's


The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944