Cystic Fibrosis Center Programs and Services

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Contact the Cystic Fibrosis Center

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Our Services

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The Cystic Fibrosis Program provides comprehensive care, including:

  • Diagnostic testing such as:
    • sweat tests
    • genetic tests
    • throat cultures
    • sputum cultures
    • blood work
    • chest x-rays
       
  • Pulmonary function tests to see how well your lungs are working
  • Bronchoscopy to examine your child’s throat, larynx, trachea and lower airways 
  • Close monitoring of nutritional status 
  • Emotional support and counseling services 
  • Patient education regarding such things as nutrition, avoiding infections, and caring for yourself at home 
  • Training in airway clearance techniques and exercise regimens 
  • Access to patient support groups and CF community organizations 
  • Adult transition management
  • Children's Young Adult Inpatient Admissions Information
  • Children's Pediatric Inpatient Admissions Information


Adult Cystic Fibrosis (CF) Program Events

The Adult Cystic Fibrosis (CF) Program at Boston Children’s Hospital and Brigham and Women’s Hospital hosted an afternoon of entertainment, education and discussion about life with Cystic Fibrosis on June 17, 2012.

Held at the Wheelock Family Theatre in Boston, the event featured a special screening of "The Power of Two," a documentary offering an intimate look into the lives of twin sisters living with CF after double lung transplants. The event also featured breakout groups to discuss issues important to the CF and transplant communities, which were recorded and can be watched below.

Topics included:

  • Managing a busy schedule while adhering to recommended chronic pulmonary therapies for CF.  Health maintenance and sustaining a safe and healthy exercise routine for patients with CF. 
  • How to raise awareness about organ donation and life after lung transplant.

Discussion Group 1


Streaming by Ustream

Discussion Group 2


Live broadcast by Ustream

Discussion Group 3


Live broadcast by Ustream

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Quality Improvement

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We are excited about our involvement in the CF Foundation sponsored Learning and Leadership Collaborative, specifically the Adult Quality Improvement (AQI2)Initiative, with emphasis on improving respiratory and nutrition care. Our endeavors include a new exercise program with support from the Vertuccio family,and improving access to meaningful nutritional support. 

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The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO
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