When your child is diagnosed with a craniofacial anomaly, the questions, acronyms and sense of worry can seem endless—and sometimes overwhelming. Browse through the sections below for some helpful information that can give you the answers, advice and support you're looking for.
Boston Children's Center for Families
Helps families locate the information and resources they need to better understand their child’s particular condition and take part in their care. All Boston Children’s patients, families and health professionals are welcome to use the Center’s services at no extra cost.
Behavioral Medicine Clinic
Helps children who are being treated on an outpatient basis at Boston Children’s—as well as their families—understand and cope with their feelings about:
- having a chronic condition
- facing uncomfortable procedures
- handling pain
- taking medication
- preparing for surgery
- changes in friendships and family relationships
- managing school while dealing with a medical condition
Provides information and emotional support to individuals with facial differences and their families and increases public understanding through awareness programs and education.
A warm and supportive community for those with microtia and other conditions affecting the ears. Provides helpful information about parent advocacy, self-advocacy and patient advocacy.
FACES: The National Craniofacial Association
Provides financial support for non-medical expenses to patients traveling to a craniofacial center for treatment. Eligibility is based on financial and medical need.
Foundation for Faces of Children
A New England-based, not-for-profit, 501(c) 3 organization that providesclear, accurate information and other educational resources to children born with craniofacial conditions and their families. The Foundation was started by Boston Children’s Hospital plastic surgeon John B. Mulliken, MD, and a handful of parents whose children were receiving treatment at Boston Children’s.