Cerebral Palsy and Spasticity Center | Patient Stories

Eric CP Patient

No holding back: Surgery to help treat cerebral palsy changed Eric's life

For years, Eric helped coach both kids and adults with physical and mental disabilities, teaching them adaptive skiing through the New England Disabled Sports program. His motivation went well beyond simple athleticism.

 

Chloe CP Patient

Chloe's Story: 'It's okay to be different'
Chloe and her family have been coming to Boston Children’s Hospital since she was a baby for her post-operative paraplegia. She says in a lot of ways she's like any 13-year-old but wants other kids to know that "it's okay to be different."

 

Maria CP PatientTeamwork and toughness: Living with cerebral palsy

"In Mexico, we never received answers about Maria's situation that gave us confidence," mom says. Luckily, their pediatrician knew of a family from Mexico who had received care for a complex condition at BCH.

 

Stella CP PatientEnjoying life to her full potential with cerebral palsy

Like many kids with CP, Stella has spasticity, or severe tightness and stiffness, in her leg muscles. A medication called baclofen - typically taken orally - can help treat spasticity, had some unwanted side effects.

 

Elijah CP PatientElijah laughs: Augmentative communication device helps boy with cerebral palsy

A computer voice utters a simple statement. Sometimes, it's "My name is Elijah." Other times, "My parents are Brian and Leah," or "I feel happy." For the first time in his life, Elijah can tell his mother, 'Yes, I want a hug.'

 

Experience Journal CPExperience Journal: Growing up with cerebral palsy

Cerebral palsy (CP) is the most common physical disability of childhood. The term CP is an umbrella term for a group of disorders that affect body movement and posture as a result of damage to a baby's developing brain.

 

Caroline CP PatientCerebral palsy can't slow this coxswain

For the women's crew team at College of the Holy Cross and rowers everywhere, all eyes are on the Head of the Charles Regatta. It's a long journey, but few have come so far as Caroline Laurendeau, the 4'11" coxswain.

 

Hunter CP Patient"I got a bike!": Adaptive bike brings freedom to boy with cerebral palsy

Seven-year-old Hunter Ripley is a boy of few words. There's a rare "bye-bye" to his mother as he sets off for school and an occasional "whee" when he's pushed on his adaptive swing.

 

Will CP PatientMoving on with cerebral palsy: New operation offers more mobility

Five-year-old Will DeMauvise has never been stopped by his cerebral palsy. In family videos, he swims, throws a baseball and drives a toy car. Everyone wants the same thing for him: a full life with independence.

 

Chris CP PatientFor kids with cerebral palsy, quality of life is paramount

When people hear the term "cerebral palsy," they might envision a child with very particular symptoms. But CP is actually a broad term that covers several different disorders.