The following is a list of Boston Children's resources that you may find helpful.
A Guidebook for Hip Surgery in Children with Cerebral Palsy (pdf)
Created by clinicians in the Cerebral Palsy program at Boston Children's, this booklet discusses various hip conditions a child with CP may encounter, as well as treatment options.
A Guidebook for Spinal Surgery in Children with Neuromuscular Disorders (pdf)
Created by clinicians in the Cerebral Palsy program at Boston Children's, this booklet discusses various spine disorders a child with CP may encounter, as well as surgical treatment options.
Cast care and maintenance
Cerebral Palsy Program Brochure (pdf)
This downloadable pdf brochure provides information about the Cerebral Palsy Program at Boston Children's Hospital.
CP Experience Journal
The Cerebral Palsy Experience Journal is a collection of stories, pictures, and personal experiences from families about what it has been like to contend with pediatric cerebral palsy. It represents the collective wisdom of families and health care providers. A group of parents and health care providers has reviewed all of these contributions for appropriateness.
Complex Care Service
The CCS program provides medical care to children with genetic disorders, birth defects and chronic complex health care needs. Children with cerebral palsy can be followed from infancy to young adulthood. For more information please call 617-355-6162.
The Clinical Genetics Program provides diagnostic evaluation for patients and families who have birth defects or developmental problems. Genetic counseling is also available for parents considering having another child. For more information please call 617-355-6394.
Guardianship: What happens when my child turns 18?
Home Care Instructions (pdf)
The Coping Clinic
The Coping Clinic helps children with special health care needs and their families find ways to handle the extra stress associated with daily life. The staff provides evaluations, short-term therapy and family counseling. For more information please call 617-355- 6688.
The Center for Families
The Center for Families helps parents become active members of their child's health care team. The Center provides information for families on questions they may have about diagnoses, community resources or hospital resources. For more information please call 617-355-6279, or email firstname.lastname@example.org
The Family to Family Program
The Family to Family Program is located within the Center for Families. It offers families support by connecting them with trained, experienced volunteer family members whose children have similar needs. For more information please call 617-355-6279.
The Family Advisory Committee
The Family Advisory Committee is comprised of parents and children who are treated regularly at the hospital, staff members and current and former patients. The purpose is to provide the patient and family perspective needed for successful collaboration between families and health care providers. Projects include: a creation of a lecture series, creating a Family Faculty speakers bureau and publication of resource guides on specific conditions. If you are interested in joining the Family Advisory Committee please call the Center for Families at 617-355-6279.
Social Work Department
The Social Work Department is made up of a variety of professionals and programs dedicated to integrating the social and psychological needs of patients and families with their health care. For more information please visit their website, or call 617-355-7965.