The Bladder Exstrophy Program at Boston Children’s Hospital cares for children with bladder exstrophy and supports their families.
Three-month-old Giorgios Bampos came from Athens, Greece, to Boston Children’s Hospital to undergo complex surgery for a rare urological condition called bladder extrosphy. Learn about his journey and find out why his family chose Boston Children’s for treatment.
If your child has bladder exstrophy, or if there is a suspected diagnosis, our clinicians provide the latest innovative treatments. We also provide psychosocial and emotional support for you and your child as you cope with the challenges of this condition. After surgical repair, we closely monitor your child's development, growth and overall health, with particular attention to bladder and kidney function.
Initial surgical reconstruction of bladder exstrophy is, perhaps, the most critical step in your child’s care. There are varied approaches for both technique and timing for this initial surgery. At Boston Children’s, our preference is to repair your child’s exstrophy in a single operation that combines closure of both the bladder and urethra (epispadias repair) at the initial surgery
Learn more about our innovative treatments and research.
After initial treatment, Boston Children’s continues to work with patients and families, providing strong psychosocial support. Our bladder exstrophy support group is a family-oriented group that brings together dedicated physicians, nurse practitioners, nurses and child life specialists experienced in caring for children with this condition. The group gives you and your child a place to learn about the condition and its management and share your concerns.
Learn more about the bladder exstrophy support group at Boston Children’s.
What is Bladder Exstrophy?
Bladder exstrophy is a rare, complex birth defect involving the urinary, reproductive and intestinal tracts, as well as the musculoskeletal system. During a baby’s development in the womb, the abdominal wall and underlying organs sometimes do not complete proper closure, and the infant is born with the bladder and the urethra inside-out and exposed on the outside of the body.
There are approximately 400 new cases of bladder exstrophy each year in the United States, and boys are affected approximately twice as often as girls. Bladder exstrophy can sometimes also result in weakened abdominal muscles and a shorter than average urethra and vagina or penis. Bladder exstrophy is often associated with several other problems, including vesicoureteral reflux and urinary incontinence.
Click here to read more in-depth information about the condition