Center for Airway Disorders (CAD) | Patient Stories

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Contact the Center for Airway Disorders

At Boston Children’s Hospital, we are dedicated to caring for every child, including those with the most challenging airway disorders. Families often travel great distances for treatment by our world-renowned doctors.

Time and time again, these families thank us for treating their children not just as patients but also as people.

While our team of specialists is exceptional, so too are the inspiring patients we treat. We invite you to learn more about some of the special children in our care.

Noahs-story-hypertension

Devastation and devotion: A father faces his daughter's difficult diagnosis

Bill and Laura were shocked. Before arriving at Boston Children’s, the O’Donnells had been told that the fainting episodes were not a big concern and could even be Shannon looking for attention. “It took Dr. Triedman three or four times to tell us before it sunk in,” remembers Bill. “He finally had to look us straight in the eye and tell us that our daughter could die from this disease. We were devastated.” Read more

How genetics can help predict — and sometimes stop — childhood cancers

Amy Kindstedt hates cancer, but the 9-year-old is very thankful for one thing: Because genetic testing on her baby brother Hunter revealed he had the same genetic mutation she did, his cancer was caught much earlier than hers — possibly sparing him the same level of intense treatment she endured. Read more

Breathing easy: Samantha’s story

Samantha Hinton spent more than a decade suffering with a laryngeal cleft. After treatment at Boston Children’s Hospital, Samantha is now enjoying just being a kid. Read more.

 





Jonathan's Story

My name is Jonathan H. and I am an older teenager from the state of Virginia. I started having major aspirating/coughing problems when I was about 4 and at the time doctors diagnosed it as reflux that needed a fundoplication. It seemed to go away somewhat for a while, but it started up again. My doctors back in VA did two revisions, two years in a row (starting when I was 14). Then we thought it went away, but it kept getting worse and worse.

Finally, I landed in the hospital for a week back in late May 2012, where they decided that essentially, I would have to go on feeding tubes for the rest of my life because they couldn't figure out what was still causing my problems. My parents and I weren't content with that, so we went to three other hospitals up and down the east coast, none of them had answers either.

That is until we went to Boston Children¹s Hospital and I was examined under anesthesia in October 2012...where Dr. Rahbar at the Center for Airway Disorders found my laryngeal cleft that apparently had been there since I was born. I underwent the laryngeal cleft repair surgery on February 4, 2013. I stayed for two nights and was doing so well that I could go home! As a side note, they wanted me to stay one more night for a follow up but unfortunately a big snow storm was headed Boston's way so I had to go home.

I'm not aspirating anymore and I'm eating pretty much normally again- something I would've probably not been able to do had it not been for Dr. Rahbar and the team finding that doggone laryngeal cleft. Thank you Dr. Rahbar and team for your hard work!

Sincerely,
Jonathan Howard

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944

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