CDKL5 Clinic | Information for patients and families

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Contact the CDKL5 Clinic

  • 617-355-6388
  • International: +1-617-355-5209
  • Schedule An Appointment: Monday-Friday 7:00am-8:00pm

Resources at Boston Children’s CDKL5 center


External information and resources

The International Foundation for CDKL5 Research has a website full of information about the condition, research and family support.
Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337