Cardiomyopathy Program Overview

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Cardiomyopathy is a condition that affects the structure and function of the heart muscle. There are several forms of the disease, and each one has a variety of possible causes and symptoms. If your child has been diagnosed with cardiomyopathy, it is important that you find a doctor who is experienced and who thoroughly understands your child’s condition.

 

Our expertise

At Boston Children's Hospital, we are fortunate to have a number of cardiomyopathy experts who regularly evaluate and care for babies, children and teens with this disease.

Services offered through our Cardiomyopathy Program include:

  • advanced diagnostic testing
  • individualized medication regimens
  • family screening and genetic assessment
  • implantable automatic defibrillator placement
  • ventricular assist device placement
  • surgical evaluation
  • heart transplantation

About Cardiomyopathy

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Cardiomyopathy is a disease of the heart muscle that decreases the heart's ability to pump blood. It is a leading cause of heart failure and the most common reason for a person to need a heart transplant.

Unlike other congenital heart conditions, there is no surgical treatment or “cure” that can repair the damaged heart or the stop the progression of the disease. Treatment options usually include:

  • medication to improve the functioning of the heart
  • ventricular assist devices for children with arrhythmia (irregular heart rhythm)
  • heart transplant for children who do not respond well to medical management

Learn more about cardiomyopathy and how Boston Children’s cares for children with cardiomyopathy.

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This department is currently not accepting appointment requests online. Please call us at: 617-355-6000. International +1-617-355-6000.

This department is currently not accepting appointment requests online. Please call us at: 617-355-6000. International +1-617-355-6000.

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Cardiac Caregiver: Christina VanderPluym, MD

  • Heart Center at Boston Children's Hospital

    Thank you, CHOB!!! Gabe is 10. Born with a form of HLHS and DS. In 2003 very few children with this dual dx survived for more than a few years. Dr. Del nido found a way. There are no words to express our gratitude. Never give up hope. Pray for direction.Read More

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  • Heart Center at Boston Children's Hospital

    One year ago our little Jonah went in for open heart surgery. He is now 15 months old and is a happy, healthy little boy. We can't thank Dr. Emani and the rest of the crew from the Heart Center at Boston Children's Hospital enough! Little Jonah thanks you too!Read More

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    Michael has two birthday's every year now; born on April 14, and re-born on June 3, 2011. It's been three years now since his heart surgery at Boston Children's Hospital. Michael is doing incredibly well, even ...Read More

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    You would never know our little heart warrior Reece was just at BCH undergoing his 8th heart cath. Thank you to all the doctors, especially Drs. Lock and Marshall, for making sure our little miracle is always smiling!Read More

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Contact the Cardiomyopathy Program

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO
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