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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
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The Cardiac Neurodevelopmental Program is based on the ongoing research of executive director Jane W. Newburger, MD, MPH, and her colleagues, including specialists from Boston Children's:
Learn more about this research.
We are assembling a unique registry of information that includes medical and neurodevelopmental information for each child participating in the Cardiac Neurodevelopmental Program.
This registry is a rich data source for research into the effects of pediatric heart disease on neurodevelopment.
For more information, please contact: Donna Donati, Program Coordinator, 617-355-3401
With funding from the NHLBI, Cardiac Neurodevelopmental Program executive director Jane Newburger, MD, MPH, along with her Boston Children's colleagues Michael Rivkin, MD, David Bellinger, PhD, and David DeMaso, MD, is studying the relationship of development and behavior to brain structure using MRI brain scans in teenagers with congenital heart defects.
Additionally, through the NHLBI-funded Pediatric Heart Network, Boston Children’s faculty are studying the longer-term neurodevelopmental outcomes of young children with hypoplastic left heart syndrome (HLHS) and other forms of single ventricle defects.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”