Cardiac Neurodevelopmental Program | Research and Innovation

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Contact the Cardiac Neurodevelopmental Program

The Cardiac Neurodevelopmental Program is based on the ongoing research of executive director Jane W. Newburger, MD, MPH, and her colleagues, including specialists from Boston Children's:

Learn more about this research.

Patient Registry

In order to further our understanding of the needs and prognoses of individuals with complex congenital heart disease, the Cardiac Neurodevelopmental Program is assembling a registry of neurodevelopmental information for many of our patients. Participation in this registry is completely voluntary and confidential, and currently 90% of patients choose to participate. The registry serves as a rich data source for current and future research into the effects of pediatric heart disease on neurodevelopment.

For more information, please contact our program coordinators at 617-355-3401.

Research funded by the National Heart, Lung and Blood Institute (NHLBI)

With funding from the NHLBI, Cardiac Neurodevelopmental Program executive director Jane Newburger, MD, MPH, along with her Boston Children's colleagues Michael Rivkin, MD, David Bellinger, PhD, and David DeMaso, MD, is studying the relationship of development and behavior to brain structure using MRI brain scans in teenagers with congenital heart defects. Additionally, through the NHLBI-funded Pediatric Heart Network, Boston Children’s faculty are studying the longer-term neurodevelopmental outcomes of young children with hypoplastic left heart syndrome (HLHS) and other forms of single ventricle defects.

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000 | 800-355-7944

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