The Cardiac Neurodevelopmental Program is based on the ongoing research of executive director Jane W. Newburger, MD, MPH, and her colleagues, including specialists from Boston Children's:
Learn more about this research.
The Cardiac Neurodevelopmental Registry
We are assembling a unique registry of information that includes medical and neurodevelopmental information for each child participating in the Cardiac Neurodevelopmental Program.
This registry is a rich data source for research into the effects of pediatric heart disease on neurodevelopment.
For more information, please contact: Donna Donati, Program Coordinator, 617-355-3401
Research funded by the National Heart, Lung and Blood Institute (NHLBI)
With funding from the NHLBI, Cardiac Neurodevelopmental Program executive director Jane Newburger, MD, MPH, along with her Boston Children's colleagues Michael Rivkin, MD, David Bellinger, PhD, and David DeMaso, MD, is studying the relationship of development and behavior to brain structure using MRI brain scans in teenagers with congenital heart defects.
Additionally, through the NHLBI-funded Pediatric Heart Network, Boston Children’s faculty are studying the longer-term neurodevelopmental outcomes of young children with hypoplastic left heart syndrome (HLHS) and other forms of single ventricle defects.