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Five things about living with Erb’s Palsy that you probably won’t find on Google

Sixteen-year-old Kailyn Looby is a Boston Children’s Hospital patient with a brachial plexus injury who refuses to let the injury slow her down . The active teenager shares some wise words to help other children with the condition thrive.

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Johanna’s story: brachial plexus can’t keep her down

Johanna Krayeski recovers after surgeryLike most new parents, we eagerly waited for nine months to meet our little troublemaker, wondering if she would have blue eyes like daddy or green ones like mommy, if she would have hair or be bald, what it would feel like to hold her in our arms. The words that came out of our doctor’s mouth a few hours after our daughter was born were the last ones we expected: “brachial plexus injury.”

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Gift of grab: Brachial plexus surgery helps tot hug and hold for the first time

“When I first met Dr. Waters, I felt like he was an angel. I knew we were in the right place and in the right hands,” recalls Jonathan Mora. It was November 2009, and the West Haven, Conn. father, his wife and their 6-month-old daughter Michelle had endured a bumpy ride since her birth on May 30, 2009.

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The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
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