Boston Hemophilia Center | For Patients & Families

Learn about the support we provide and the resources available for patients and families coping with issues related to bleeding disorders.

Back to school with a bleeding disorder

When your child has a bleeding disorder, sending them to school, adds another level of preparedness. The Boston Hemophilia Center is here to help you plan ahead and take proactive steps to ensure that the school experience is as normal and safe as possible. It's important to inform school personnel about your child's bleeding disorders so that they can provide appropriate support. We can help with that. For more information, contact our hemophilia nurse, Maura Padula, RN, or social worker, Jacqueline Miranda, MSW, LICSW.

Patient- and family-focused programs

Each year, the Boston Hemophilia Center offers patient- and family-focused programs. In past years, programs have included:

  • half-day education programs
  • World Hemophilia Day celebrations
  • summer events focused on outdoor activities and physical fitness

To learn more about upcoming events , visit our Facebook page.

Meet Colin.

By the time he started preschool, his teachers already understood hemophilia and what to do if he got hurt. 

READ HIS STORY

Colin, who has hemophilia, getting ready to go down a slide

Helpful resources

Read about family experiences, the latest news from the Boston Hemophilia Center and access links to valuable information about hemophilia.

Gift of Experience II book cover

'The Gift of Experience II'

"The Gift of Experience II," available on Amazon, was written for families with newly diagnosed or young children with hemophilia. This book provides excerpts of conversations with 19 parents from the Boston Hemophilia Center, who share what it’s been like to raise their children from birth to age six.

Learn more about the book
Cover of BHC Summer newsletter

Boston Hemophilia Center newsletter

Centerpoints is Boston Hemophilia Center’s patient and family newsletter. 

Download and read the latest edition

Useful links