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There are many ways you can help children and their families get the care they need.
The Bladder Exstrophy Program at Boston Children's Hospital specializes in the care of children with bladder exstrophy, a rare, complex birth defect - also known as exstrophy of the bladder or classic bladder exstrophy, involving the urinary, reproductive and intestinal tracts, as well as the musculoskeletal system.
Boston Children's Bladder Exstrophy Program is dedicated to providing exceptional pediatric care and support to our young patients and their families.
If your child has bladder exstrophy, or if there is a suspected diagnosis, our clinicians provide the latest innovative treatments. We also provide psychosocial and emotional support for you and your child as you cope with the challenges of this condition. After surgical repair, we closely monitor your child's development, growth and overall health, with particular attention to bladder and kidney function.
Initial surgical reconstruction of bladder exstrophy is, perhaps, the most critical step in your child’s care. There are varied approaches for both technique and timing for this initial surgery. At Boston Children’s, our preference is to repair your child’s exstrophy in a single operation that combines closure of both the bladder and urethra at the initial surgery.
Learn more about our innovative treatments and research.
After initial treatment, Boston Children’s continues to work with patients and families, providing strong psychosocial support. Our bladder exstrophy support group is a family-oriented group that brings together dedicated physicians, nurse practitioners, nurses and child life specialists experienced in caring for children with this condition. The group gives you and your child a place to learn about the condition and its management and share your concerns.
Learn more about the bladder exstrophy support group at Boston Children’s.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”