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Boston Children's Bladder Exstrophy Program is dedicated to providing exceptional pediatric care and support to our young patients and their families.
If your child has bladder exstrophy, or if there is a suspected diagnosis, our clinicians provide the latest innovative treatments. We also provide psychosocial and emotional support for you and your child as you cope with the challenges of this condition. After surgical repair, we closely monitor your child's development, growth and overall health, with particular attention to bladder and kidney function.
Initial surgical reconstruction of bladder exstrophy is, perhaps, the most critical step in your child’s care. There are varied approaches for both technique and timing for this initial surgery. At Boston Children’s, our preference is to repair your child’s exstrophy in a single operation that combines closure of both the bladder and urethra at the initial surgery.
Learn more about our innovative treatments and research.
After initial treatment, Boston Children’s continues to work with patients and families, providing strong psychosocial support. Our bladder exstrophy support group is a family-oriented group that brings together dedicated physicians, nurse practitioners, nurses and child life specialists experienced in caring for children with this condition. The group gives you and your child a place to learn about the condition and its management and share your concerns.
Learn more about the bladder exstrophy support group at Boston Children’s.
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