Bladder Exstrophy Program

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The Bladder Exstrophy Program at Boston Children’s Hospital cares for children with bladder exstrophy (also called exstrophy of the bladder or classic bladder exstrophy) and supports their families.

Below, learn how a young boy from Greece was successfully treated for bladder exstrophy at Boston Children’s Hospital. Also, find out why our hospital’s doctors are championing a treatment that involves fewer surgeries than the previous approach. 

 

 

Three-month-old Giorgios Bampos came from Athens, Greece, to Boston Children’s Hospital to undergo complex surgery for a rare urological condition called bladder extrosphy. Learn about his journey and find out why his family chose Boston Children’s for treatment. 

Our approach

If your child has bladder exstrophy, or if there is a suspected diagnosis, our clinicians provide the latest innovative treatments. We also provide psychosocial and emotional support for you and your child as you cope with the challenges of this condition. After surgical repair, we closely monitor your child's development, growth and overall health, with particular attention to bladder and kidney function.

Initial surgical reconstruction of bladder exstrophy is, perhaps, the most critical step in your child’s care. There are varied approaches for both technique and timing for this initial surgery. At Boston Children’s, our preference is to repair your child’s exstrophy in a single operation that combines closure of both the bladder and urethra at the initial surgery.


Learn more about our innovative treatments and research.

After initial treatment, Boston Children’s continues to work with patients and families, providing strong psychosocial support. Our bladder exstrophy support group is a family-oriented group that brings together dedicated physicians, nurse practitioners, nurses and child life specialists experienced in caring for children with this condition. The group gives you and your child a place to learn about the condition and its management and share your concerns.

Learn more about the bladder exstrophy support group at Boston Children’s.

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Contact the Bladder Exstrophy Program

  • 1-617-355-7796
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO
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