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Contact the Bladder Exstrophy Program

  • 1-617-355-7796

Bladder Exstrophy Program Overview

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The Bladder Exstrophy Program at Boston Children's Hospital specializes in the care of children with bladder exstrophy, a rare, complex birth defect - also known as exstrophy of the bladder or classic bladder exstrophy, involving the urinary, reproductive and intestinal tracts, as well as the musculoskeletal system.

Boston Children's Bladder Exstrophy Program is dedicated to providing exceptional pediatric care and support to our young patients and their families.

Find out how Boston Children's urology physicians treat patients with bladder exstrophy and how their pediatric expertise positively impacted a young boy from Greece.

If your child has bladder exstrophy, or if there is a suspected diagnosis, our clinicians provide the latest innovative treatments. We also provide psychosocial and emotional support for you and your child as you cope with the challenges of this condition. After surgical repair, we closely monitor your child's development, growth and overall health, with particular attention to bladder and kidney function.

Initial surgical reconstruction of bladder exstrophy is, perhaps, the most critical step in your child’s care. There are varied approaches for both technique and timing for this initial surgery. At Boston Children’s, our preference is to repair your child’s exstrophy in a single operation that combines closure of both the bladder and urethra at the initial surgery.
Learn more about our innovative treatments and research.

After initial treatment, Boston Children’s continues to work with patients and families, providing strong psychosocial support. Our bladder exstrophy support group is a family-oriented group that brings together dedicated physicians, nurse practitioners, nurses and child life specialists experienced in caring for children with this condition. The group gives you and your child a place to learn about the condition and its management and share your concerns.
Learn more about the bladder exstrophy support group at Boston Children’s.

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO