The AFCC's experience in fetal care has shown that the earlier an anomaly can be correctly diagnosed, the greater a baby's chances of experiencing optimal development and health. Using advanced diagnostic tools, ground-breaking surgical and medical treatments, and supportive care, fetal specialists at Boston Children's Hospital are increasing the chances of survival and the quality of life for many newborns. We strive to provide as much helpful information that relates to the diagnosis as possible so each family can make the most informed decision.
At every step of the way, the AFCC team is committed to open, honest communication with families and compassionate support.
Friends, say hello again!
If you've ever visited the AFCC, we'd love to hear from you. Let us know how you felt about your experience here. Stories, discoveries and simple hellos are also welcome. Please click here to open a blank email message or address your comments to email@example.com.
Most new patients come to the AFCC when routine tests have indicated a problem with your unborn fetus. You may have been referred by your physician, or you can contact our center directly at 617-355-3896 or 1-866-FETALCARE, or by requesting an appointment online.
We understand the anxiety many families feel when contacting us. From the first telephone conversation, we strive to provide helpful, informative and compassionate support. We want to know your concerns and find out how much information you have about your fetus's health. We'll answer your questions and share our knowledge based on our experience and the most current data.
During the initial telephone intake, our administrative associate will obtain relevant information from you including referring physician and insurance information. You or your obstetrician will be asked to fax medical information to us for review: 617-730-0302.
A member of the AFCC team will review all information and contact you to obtain additional history, assess your understanding of the health problem, answer your questions and offer support and reassurance. Additionally, they will coordinate all appropriate diagnostic testing and counseling sessions.
Every attempt will be made to schedule imaging studies and appointments in a timely fashion to best meet the needs of our patients during this difficult time. Some appointments will require special diagnostic testing including ultrasound, MRI, or echocardiogram based on the fetal diagnosis, or suspected diagnosis.
Planning Your Visit
Many families that come to the Advanced Fetal Care Center have questions related to available resources. A new online photo tour will illustrate some of the resources available to you and what your experience with us will be like. Additionally, services for Patients and Families provide information to help plan your visit.
Use these quick links for specific questions you may have:
Many of our patients at the Advanced Fetal Care Center go on to deliver their babies at Brigham and Women's Hospital or Beth Israel Deaconess Medical Center, both of which are located right by Boston Children's Hospital. This often brings up a number of questions for patients and their families, especially if they do not live locally:
Where will you stay when your baby is in the hospital? How will you visit from the delivering hospital? What resources are available to your family to assist with the costs of being here?
The AFCC social worker is available to discuss these concerns and options with you, as well as to set up a pre-delivery appointment to see the hospital unit your baby will be admitted to, often our:
- Newborn Intensive Care Unit (NICU) - 7 North
- Medical Surgical Intensive Care Unit (MSICU)- 7 South
- Cardiac Intensive Care Unit (CICU) - 8 South
At this time you will also visit the Center for Families and be given a journal compiled by the AFCC and the Center for Families to help you organize and take notes related to the information you're being given about your baby. It also includes information to help orient you to the hospital.
Coping and Preparing for The Road Ahead
Many of our patients are in different phases of their pregnancy and faced with a diverse range of medical diagnoses, decisions and concerns. It is not unusual that our patients and their family members are under significant emotional stress.
Maybe you have just heard about a potential diagnosis and are attempting to learn more? Maybe you have been counseled extensively and are making decisions about your pregnancy? Maybe you are anticipating a loss or are fearful of the prognosis? Maybe you are considering treatment options and/or awaiting a delivery?
The emotional stress related to the anxiety, fear, anger, sadness, and overall grief that your pregnancy has been irrevocably changed can be exhausting physically, mentally and emotionally.
Here are some ideas to help you get through this period of time. Please use those that may be helpful to you and disregard the others:
- Gather information from reliable sources.
There is a lot of information on the Internet and elsewhere about different diagnoses, patient stories, etc. Read this information carefully, as not all situations are the same. Sometimes there may be information not relevant to your story which may be more anxiety provoking than helpful.
- Write down your concerns and questions.
This will give you something constructive to do when you're feeling overwhelmed with "what ifs" and provides a concrete list to help you remember your concerns and questions during your appointments or phone calls with providers.
- Talk with someone you trust.
Talking with others (such as family, friends, and health care and mental health professionals) gives you the opportunity to vent and obtain support about how you are feeling and also helps them understand what your concerns are.
- Take care of yourself.
Eat regular and balanced meals. Rest and nap. Exercise to get rid of nervous energy.
- Explore what's helped you through stressful and scary times in the past and see if you can apply those things now.
Does keeping your routine help? Sometimes work, caring for another child, and/or participating in a regular activity helps structure our days and provides healthy distraction when we're most stressed. Does giving yourself a time out help? Give yourself permission to take a day off, cancel an appointment that doesn't need to be kept, etc., in order to decompress or process and experience what you are feeling.
- Try relaxation techniques
Try deep breathing, guided imagery, and meditation.
- Journal your thoughts and emotions.
This form of venting is more private than talking to others and sometimes allows for a cathartic release and insight development unique to this form of expression.
- Accept help and support from others.