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A heartfelt reunion

Adult Congenital Heart PatientChildhood friends Eileen and Annie were like most young girls who grew up in the 1980s: They played with Cabbage Patch Kids and My Little Ponies, and when Cyndi Lauper came on the radio to remind listeners that “Girls Just Wanna Have Fun,” they both danced and sang along like the song was written especially for them. But these two had a lot more in common than a mutual love for big hair and toy horses.

For starters, both girls were born with a serious congenital heart condition—Annie with Hypoplastic Left Heart Syndrome (HLHS), Eileen with Double Inlet Left Single Ventricle (DIVLS)—that brought them to Boston Children’s Hospital’s Heart Center for treatment in 1986. While at the hospital, they shared a room, each waiting their turn to receive the Fontan Procedure, a specialized surgery that helps children who have only a single working pumping chamber in their heart. Read more.

Skylar’s story: My heart surgery scar makes me appreciate life

I can still recall being a five-year-old girl in the women’s locker room of the swim and tennis club my family attended in the summer. I’m peering around the room at all the other girls’ and women’s chests, and I notice for the first time that no one else has the same six-inch scar down the middle of their chests that I have. Until then, I thought that everyone had that scar. Read more.

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- Sandra L. Fenwick, President and CEO

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