Adult Congenital Heart Service | Patient Resources

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Contact the Adult Congenital Heart Program


WELCOME to our program

Before your visit, you may need additional resources to help make your time with us run smoothly. Please visit our patient resources page for tips on your visit.

Adult congenital heart support group

The Boston Adult Congenital Heart Program (BACH) and the Department of Psychiatry at Boston Children's Hospital have joined forces to co-sponsor a monthly support group for adults with CHD.

Meeting time
When occurring, it is the first Monday from 6 to 7:30 p.m. If the first Monday of the month is a holiday, then the meeting will be held the following Monday at the usual time.
Location Boston Children's Hospital Fegan 230 (Nadas Conference Room)
RSVP Please check to see if it's happening prior to attending: 617-355-6508
For more info
contact Jonas Bromberg, MD, the group facilitator, by e-mail: jonas_bromberg@hms.harvard.edu or by phone: 617-332-6028

Free parking in the Boston Children's Hospital garage and dinner are provided.

Cardiac Caregiver Bill Kerr, RN of Boston Children's Hospital speaks about his passion for helping patients get better

Adult Congenital Heart Association (ACHA)

The Adult Congenital Heart Association (ACHA) is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy and promotion of research, ACHA supports the more than one million adults with congenital heart defects, their families and the medical community.

We, as BACH providers, are honored to have worked with the ACHA since its inception and we continue to serve as members on the medical advisory board.

The Adult Registry for Congenital Heart Evidence, Evaluation and Standards

Improvements in current and future care of adults with congenital heart disease hinge upon the collection and interpretation of "follow-up" data, coupled with innovation and multi-disciplinary collaboration.

The BACH ARCHES (Adult Registry for Congenital Heart Evidence, Evaluation and Standards) is our identity-protected data collection and management group. The database has many objectives including:

  • Peer review monitoring of appropriateness or care and quality assurance
  • Outcomes assessment and risk stratification
  • Generation of evidence to develop medical and surgical care standards and innovative therapies

As a patient, you will likely be offered the opportunity to participate in some of the BACH ARCHES programs or any research project is not a requirement for care within the BACH group.

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000 | 800-355-7944

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