Adult Congenital Heart Service Patient Resources

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Adult congenital heart support group

The Boston Adult Congenital Heart Program (BACH) and the Department of Psychiatry at Boston Children's Hospital have joined forces to co-sponsor a monthly support group for adults with CHD.

Meeting time
first Monday of each month from 6 to 7:30 p.m. If the first Monday of the month is a holiday, then the meeting will be held the following Monday at the usual time.
Location Boston Children's Hospital Farley 230 (Nadas Conference Room)
RSVP 617-355-6508
For more info
contact Jonas Bromberg, MD, the group facilitator, by e-mail: jonas_bromberg@hms.harvard.edu or by phone: 617-332-6028
Free parking in the Boston Children's Hospital garage and dinner are provided.

Adult Congenital Heart Association (ACHA)

The Adult Congenital Heart Association (ACHA) is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy and promotion of research, ACHA supports the more than one million adults with congenital heart defects, their families and the medical community.

We, as BACH providers, are honored to have worked with the ACHA since its inception and we continue to serve as members on the medical advisory board.

 

The Adult Registry for Congenital Heart Evidence, Evaluation and Standards Database

Improvements in current and future care of adults with congenital heart disease hinge upon the collection and interpretation of "follow-up" data, coupled with innovation and multi-disciplinary collaboration.

The BACH ARCHES (Adult Registry for Congenital Heart Evidence, Evaluation and Standards) is our identity-protected data collection and management group. The database has many objectives including:

  • Peer review monitoring of appropriateness or care and quality assurance
  • Outcomes assessment and risk stratification
  • Generation of evidence to develop medical and surgical care standards and innovative therapies

As a patient, you will likely be offered the opportunity to participate in some of the BACH ARCHES programs, but know that participation in the BACH ARCHES programs is not a requirement for care within the BACH group.

Request an Appointment

If this is a medical emergency, please dial 9-1-1. This form should not be used in an emergency.

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Send RequestIf you do not see the specialty you are looking for, please call us at: 617-355-6000.International visitors should call International Health Services at +1-617-355-5209.
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This department is currently not accepting appointment requests online. Please call us at: 617-355-6000. International +1-617-355-6000.

This department is currently not accepting appointment requests online. Please call us at: 617-355-6000. International +1-617-355-6000.

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You will be contacted within 1 business day.

If you have questions or would like more information, please call:

617-355-6000 +1-617-355-6000
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Cardiac Caregiver: Michael Landzberg, MD

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The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO
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