Neuromuscular Center | In the News

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Several of our patients are featured in this article on rare congenital myopathies from the spring 2009 issue of Vector, a Boston Children’s Hospital publication on research. 

2 children with rare disease who live 300 miles apart finally meet for special playdate

Boston Children’s Hospital patients are featured on the television program “Inside Edition.” The 3-year-olds share the same rare disease, spastic paraplegia, SPG47, and are the only two confirmed case in the United States.  Boston Children’s Basil Darras, MD, who treats the girls, provides expert insight on the rare condition.  

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

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