Multidisciplinary Neurofibromatosis Program | Meet our Team

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David Miler

David Miller, MD, PhD

Director, Neurofibromatosis Program

Department: Genetics and Genomics

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Nicole Ullrich , MD, PhD

Nicole Ullrich, MD, PhD

Associate in Neurology; Director, Neurologic Neuro-Oncology; Associate Director, Clinical Trials, Neurofibromatosis Program

Department: Hematology Oncology

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Mayra Martinez-Ojeda MD

Mayra Martinez Ojeda, MD

Physician

Department: Genetics and Genomics

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Caroline McGowan MS, CGC

Caroline  McGowan, MS

Coordinator, Neurofibromatosis Program; Licensed Genetic Counselor

Department: Genetics and Genomics

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Gena Heidary

Gena Heidary, MD, PhD

Department: Ophthalmology

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Meredith Chambers M. Ed.

Meredith A. Chambers, M. Ed.

Patient and Family Educator

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Alicia Casey MD

Alicia Casey, MD

Co-Director, Interstitial Lung Disease Program

Department: Medicine

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Laurie E.  Cohen

Laurie Cohen, MD

Clinical Chief, Division of Endocrinology

Department: Endocrinology

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John Emans

John B. Emans, MD

Director, Spinal Surgery Division; Orthopedic Surgeon

Department: Orthopedic Center

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Oren Ganor, MD

Attending Physician in Plastic Surgery

Department: Plastic and Oral Surgery

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Lily Goumnerova, MD, FRCSC

Liliana C. Goumnerova, MD, FRCSC

Director, Pediatric Neurosurgical Oncology Dana Farber/Boston Children’s Hospital Cancer Center; Director, QI Program Department of Neurosurgery

Department: Neurosurgery

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Mark Kieran

Mark Kieran, MD, PhD

Director, Pediatric Medical Neuro-Oncology, Dana-Farber/Boston Children’s

Department: Hematology Oncology

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Peter Manley

Peter Manley, MD

Director, Pediatric Neuro-Oncology Outcomes Clinic

Department: Hematology Oncology

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Mark Proctor MD

Mark Proctor, MD

Neurosurgeon-in-Chief; Director, Brain Injury Center

Department: Neurosurgery

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Reza Rahbar MD DMD FACS

Reza Rahbar, DMD, MD

Associate Otolaryngologist-in-Chief: Director of Center for Airway Disorders: Co-Director, Head, Neck and Skull Base Surgery Program

Department: Otolaryngology and Communication Enhancement

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Edward Robert Smith, MD

Edward Robert Smith, MD

Director, Pediatric Cerebrovascular Neurosurgery; Co-Director, Cerebrovascular Surgery and Interventions Center; Co-Director, Head, Neck and Skull Base Surgery Program; Associate in Neurosurgery

Department: Neurosurgery

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Amir Taghinia, MD

Amir Taghinia, MD

Attending Surgeon

Department: Plastic and Oral Surgery

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Christopher Weldon MD PhD

Christopher Weldon, MD, PhD

Assistant in Surgery; Director, Pediatric Surgery Critical Care Fellowship

Department: Surgery

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- Sandra L. Fenwick, President and CEO

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