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There are many ways you can help children and their families get the care they need.
Boston Children's Hospital's Midaortic Syndrome and Renovascular Hypertension (MAS/RVH) Program diagnoses, treats and provides long-term care for pediatric patients with either or both of these rare disorders.
Not only are MAS and RVH rare and potentially life-threatening conditions; they can also affect different children in very different ways. It's essential to seek care from a team of pediatric specialists who are highly experienced in diagnosing and treating these conditions and all related complications.
Most children with midaortic syndrome and/or renovascular hypertension are diagnosed after being examined for signs of severe high blood pressure (hypertension).
The exact symptoms of MAS/RVH will depend on the individual child, but can include:
Some of the tests our doctors may use to confirm that a child has MAS and/or RVH are:
angiography—injection of a special dye into blood vessels, then using X-ray imaging to look for narrowing
ultrasonography—a painless, non-invasive procedure that uses special sound waves to create pictures of a child's organs
Computed Tomography (CT)
Magnetic Resonance Imaging (MRI)
The treatment approach for each child depends very much on:
Treatment options typically include one or more of the following:
medication to control blood pressure and improve heart and/or kidney function
angioplasty—the use of a narrow tube called a catheter to insert and inflate a balloon inside the narrowed artery, widening it and improving blood flow to the affected organs
stenting—the placement of a special tube called a stent in a narrowed artery to hold it open
In the most serious cases, doctors may recommend:
bypass graft surgery—an operation that makes detours, or "bypasses," around narrowed arteries, creating new paths for blood to flow
autotransplantation—moving a kidney to a new location where the blood flow can be improved
kidney transplantation (in cases where both kidneys are damaged to the point of causing irreversible kidney failure)
In a very exciting development, Boston Children's Hospital has pioneered a novel way of "stretching" the healthy vessels in the aorta to make them long enough to adequately replace the narrowed vessels. This procedure is called Tissue Expander Stimulated Lengthening of Arteries (TESLA).
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”