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Information on our team can be found here.
We are currently updating our program so please wait for further updates for the full listing of our team. For any phone inquiries, please contact the Fegan 4 clinic: 617-355-6394
Dr. Bodamer obtained his M.D. and Ph.D. degrees from the Universities of Heidelberg and Saarland, Germany, respectively. He has done Pediatrics training in Germany and at Great Ormond Street Hospital in London and subspecialty training in Clinical and Biochemical Genetics at Baylor College of Medicine in Houston. Following being the director of the Austrian Newborn Screening Program and of the Division for Pediatric Genetics at the University Children’s Hospital in Vienna he returned to the United States in 2010 to join the University of Miami as the founding Chief of the Division of Clinical and Translational Genetics and Director of the Medical Genetics Laboratories. Dr. Bodamer was recruited to Boston Children’s Hospital in 2015, where he has established an active basic and translational research program. He is member of several editorial and scientific advisory boards and patient advocacy groups. Dr. Bodamer has a busy clinical practice at Boston Children’s Hospital where he sees patients of all age groups with lysosomal storage disorders. In addition he is active in several areas of translational genetics and genomics research, clinical trials and involved in educational and teaching activities within Harvard Medical School.
Aishwarya is a genetic counselor at Boston Children’s Hospital. Aishwarya received her master’s degree in human genetics and genetic counseling from the Emory University in 2014. She received her certification from the American Board of Genetic Counseling in 2015. She completed her undergraduate studies in biotechnology and bioinformatics in India. Since joining the Boston Children’s Hospital in March, 2015 Aishwarya has been involved in development and management of BoLD program, lysosomal storage disease clinical care and research. She is currently one of the clinical coordinators for the BoLD program and her role with be to help our patients and families with their complex medical care, by providing clinical care, follow-up and counseling for our patients. Her special interests are focused on patient outcomes research, facilitating clinical trials for new therapies, clarifying disease information provision to patients/families, assisting with transition from childhood to adulthood.
Leah Hecht, MEd, MSN, CPNP
Leah has extensive experience working with children and adults with chronic illnesses and disabilities. She graduated from Yale University with a Master’s in pediatric nursing with a focus on chronic illness in 2005. She completed her undergraduate studies in the basic sciences and education, followed by an MEd in Deaf education at Boston University. She has worked at Perkin’s school for the blind in the deaf-blind program; later, in a pediatric craniofacial surgery program, and since 2007, has been the NP in the metabolism program at Boston Children’s Hospital. For the past five years, Leah has been actively participating in the fundraising efforts of the hospital, raising up to twenty thousand dollars annually for the metabolism program. Leah has a strong focus on patient management and ongoing coordination of care. Her role as clinic coordinator in the BoLD program will focus on further supporting families and assuring that the multidisciplinary care for each child is effectively managed.
Amy Kritzer completed her undergraduate studies at Barnard College, Columbia University with a bachelor of arts in Biology. She graduated from Albert Einstein College of Medicine in 2003 with a degree with distinction in child and adolescent psychiatry followed by a residency in Pediatrics at the Floating Hospital for Children at Tufts Medical Center. She began at Boston Children’s Hospital in 2013 with her fellowship in Clinical Genetics and Metabolism. She has a deep commitment to caring for individuals with complex medical needs. Prior and current research projects involve increasing education and communication with community providers, enhancing the school and work experience of children and adults, and better understanding and support of `the experience of parents and caregivers within the healthcare setting. She is also the Principal Investigator on several Lysosomal Disease specific registries. In her role as Co-Director of the BoLD clinic she seeks to create an environment that promotes living well with chronic disease. Amy has four children.
Dr. Sacharow is a medical geneticist experienced in the management of patients with rare metabolic conditions including lysosomal storage disorders. She studied Neuroscience at Vanderbilt University prior to getting her MD at the University of Miami Miller School of Medicine. She is board-certified in Medical Genetics, Medical Biochemical Genetics and Pediatrics. She was involved with the implementation and execution of expanded newborn screening for metabolic disease in South Florida for 10 years. Dr. Sacharow was recruited to Boston Children’s Hospital/Harvard Medical School in 2015 as Director of the Jewish Genetics Program and Co-Director of the Boston Children’s Lysosomal Storage Disease (BoLD) Program. Her talents as experienced dysmorphologist and geneticist complement her expertise in lysosomal storage disorders to benefit patients and their families alike. Dr Sacharow has published numerous articles in prestigious Journals and is co-investigator in multiple clinical trials including one of the seminal trial for Niemann Pick Type C.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”