Inflammatory Bowel Disease Center | Reference Book List

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Contact the Inflammatory Bowel Disease Center

  • 1-617-355-6058

Comic book

The Center created this comic book to provide age-appropriate education about Crohn's disease and ulcerative colitis, while promoting literacy and better health among young readers. Created by Boston Children's clinicians and the renowned comic artist and writer team of Joe and Hilarie Stanton, Pete Learns All About Crohn's & Colitis explores the causes of Crohn's disease and ulcerative colitis, and offers advice on how to live a happy, normal life with either condition.

Pete Learns All About Crohn's & Colitis

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"Your Child with Inflammatory Bowel Disease: A Family Guide for Caregiving" is a 304 page book containing everything a family needs to know about the symptoms, diagnoses and treatments associated with Crohn's disease, ulcerative colitis and indeterminate colitis.

Written clearly and accessibly, this book covers all the important aspects of IBD's causes and management, as well provides parents with practical advice on how to talk to their children about their IBD and the challenges they may face at school and in their social lives, especially as they grow older. Additional information on IBD medications, complementary treatments and more make Your Child with Inflammatory Bowel Disease a comprehensive and in-depth resource for families.

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  • Your Child with Inflammatory Bowel Disease: A Family Guide for Caregiving, by the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition. Editors-in-chief: Maria Oliva-Hempker, David Ziring, MD, and Athos Bousvaros, MD. Johns Hopkins University Press, (2010). 163 p. Recommended by the physicians at Children’s Hospital, Boston’s IBD Center.

  • Straight from the gut: living with crohn’s disease and ulcerative colitis, by C. Kalibijan, O’Reilly & Associates, Inc. (2003). Written by a patient with IBD, this book is highly recommended by the physicians at Children's Hospital, Boston’s IBD Center.

  • A Delicate Balance: Living Successfully with Chronic Illness by Susan Wells, (1998): This book is a must read for people with a chronic illness. It provides insights about living with a chronic illness through interviews with patients, families, and care providers. It includes information about all aspects of living with a chronic illness, from diagnosis to necessary workplace accommodations.

  • Inflammatory Bowel Disease: A Guide for Patients and Their Families by Stanley H. Stein, M.D., and Richard P. Rood, M.D., (1998): Available at CCFA Bookstores, this book is a complete resource for everyone affected by IBD directly or indirectly. It provides practical and thorough information in an easy-to-understand, friendly tone. Some topics covered include pregnancy, diet and nutrition, emotional impact, and medical therapy.

  • Going Abroad: The Bathroom Survival Guide, A Comprehensive Guide to Answering the Call of Nature Anywhere in the World by Eva Newman, Marlor Press, (1997): This is a comprehensive guide to toilets all around the world, from bidets to squat toilets. Written for travelers used to Western toilets, this guide includes practical information on using unfamiliar facilities, discusses related health issues, and provides anecdotes from fellow travelers.

  • The Intelligent Patient’s Guide to the Doctor-Patient Relationship: Learning How to Talk so Your Doctor Will Listen Barbara M. Korsch, M.D., and Caroline Harding, Oxford Press, (1997): This book teaches readers hot to ask the right questions and understand the doctor’s answers. This is an excellent resource for all people who are concerned about taking control of their health and getting the most out of a doctor’s visit.

  • Kitchen Table Wisdom: Stories that Hal by Rachel Naomi Remen, M.D., Riverhead Books, (1997): The author has a background as a prominent physician, a professor of medicine, a therapist, and a long-term survivor of chronic illness. In the form of a collection of true stories, she presents examples from practice and her own personal experiences.

  • Alive and Kicking by Rolf Benirschke and Mike Yorkey, The Firefly Press, (1996): An inspirational personal story of an NFL player who overcame the challenges of ulcerative colitis and returned to professional football for seven more seasons.

  • Managing your Child’s Crohn’s Disease or Ulcerative Colitis, by K. Benkov and H. Winter, MasterMedia Limited, (1996). 163 p. Recommended by the physicians at Children’s Hospital, Boston’s IBD Center.

  • The Physician Within: A Step-By-Step Guide to Living Well With Chronic Illness by Catherine Feste, (1995): This book confronts many issues associated with chronic illness by providing supportive messages and tips, including controlling stress, developing a positive self-image, and adapting to life’s challenges.

  • Colitis: The Experience of Illness by Michael P. Kelly, Routledge, (1992): Written by a person with ulcerative colitis, this book describes the disease and its challenges from a patient’s perspective.

Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337