Inflammatory Bowel Disease Center Living with Ulcerative Colitis

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Contact the Inflammatory Bowel Disease Center

  • 1-617-355-6058

Learn what it's like living with ulcerative colitis and how to help your child.

Summary points

  • Meeting with a social worker at the time of diagnosis can help with lifestyle adjustments.

  • Families often experience grief over the loss of normalcy and predictability.

  • For young children, it is important to get back to a routine as soon as possible. Even if activities have to be a bit altered, rituals and predictability can help bring back a sense of safety and normalcy.

  • Stress doesn’t cause ulcerative colitis (UC), but it can sometimes make symptoms worse. Anticipating stressful situations provides the opportunity to problem-solve ways to cope.

  • Pre-teens and adolescents are most concerned with the social implications of their UC and the invasion of privacy. It is important for them to regain a sense of control and decide what to tell others. There is no right or wrong way to share information; however, telling friends can help provide support during a flare up.

Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337