Fetal Cardiology Program | Patient Stories

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Read about the patients treated by the Fetal Cardiology Program at Boston Children's Hospital. Early diagnosis, advances in prenatal care and significant strides in slowing the progress of heart failure have transformed their lives and the lives of their families.

Kalev

Advances in the medical management of pediatric heart failure 
Thirty weeks into her pregnancy, Katie Rosenthal knew something was wrong. An ultrasound revealed her unborn baby’s heart was in serious danger. Learn how Kalev's severe heart failure was medical managed.

MasonSuperMason vs. complex congenital heart disease
Mason was not likely to survive the trip from western Massachusetts if he was born close to home, so he was born in Boston. In total, he had seven cardiac interventions, including three open heart surgeries to correct his complex congenital heart disease. Learn more about Mason, who knows how to talk about his heart condition and shows off his scar proudly.

JoeyA Parent’s view: The importance of children’s hospitals
The first time Joey's life was saved was when he was 21 hours old. Joey had been diagnosed in utero with a ventricular septal defect, a hole between the right and left sides of his heart, and a duodenal stenosis, where a portion of the intestine is so constricted that very little can pass through. Learn how doctors in the Advanced Fetal Care Center cared for Joey.

Peter

Determined to overcome HLHS
Before Peter was born, his parents received frightening news. During his mom's 18-week check-up, the ultrasound technician didn’t see any sign of blood flow in the left chambers of the baby’s heart. The discovery meant Peter most likely would be born with hypoplastic left heart syndrome. Read more about Peter's surgery and recovery.

AriTaking the world by storm: Keeping up with Ari Schultz
When Ari's parents learned that their soon-to-be born son had fetal critical aortic stenosis they were devastated but determined to help him the best they could. So, they came to Boston Children's Advanced Fetal Care Center, where two fetal cardiac interventions were performed on Ari in-utero, making him the only person in the world to have two successful cardiac interventions pre-birth. 

HavenTreating Haven’s pulmonary atresia
When Molly was first pregnant, she admits she knew very little about congenital heart defects or how they could affect her unborn daughter, Haven. But, around 20 weeks into her pregnancy, Molly discovered that heart defects were very real — and very scary — when an ultrasound revealed that Haven had pulmonary atresia.

JackGame changer
An ultrasound technician noticed a problem with Jack’s heart during the 18th week of his mom's pregnancy. Further testing showed his aortic valve was too narrow, restricting blood flow and weakening the development of the left ventricle. Read how a first-of-it-kind surgery was performed to repair the obstructed valve while Jack was still in the womb.

Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337

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