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There are many ways you can help children and their families get the care they need.
A PEG tube is used to give your child formula and/or fluids through a hole in the stomach called a “stoma” because your child is not able to take enough nutrition by mouth. The tube may also be used to give medicine.
Clean the PEG tube site at least once a day using these steps:
Giving Feedings, Medicine and Flushing the PEG Tube
Do not try to replace the tube. The tube must be replaced by a trained doctor or nurse. Call your GI doctor, tape gauze over the stoma, and bring your child to the Children’s Hospital Emergency Department right away.
If you cannot get to Children’s Hospital Boston within 2 hours, you may have to take your child to a closer hospital first. Please have the local doctor call the GI doctor on-call at Children’s to discuss the best plan when you arrive. Your child’s stoma may close up if the PEG tube is out for more than a few hours.
Your child will be scheduled for a follow-up visit with one of our GI nurses 2 weeks after PEG placement. Your child will also be scheduled for a check-up visit with their GI doctor and nutritionist 4 weeks after the PEG placement. At these follow-up visits, we will check to make sure the stoma is healing and the PEG tube is working well. If you need to change your appointment date or time, please call the GI clinic at (617) 355-6058.
Please call the GI office at (617) 355-6058 if you have questions or concerns. Our GI nurses can help you with all types of PEG tube questions:
If your child is followed by General Surgery:
Call the General Surgery outpatient nurses at (617) 355-7716 or (617) 355-7704.
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