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Principal Investigator: Athos Bousvaros, MD, MPH
Protocol Title: Harvard Inflammatory Bowel Disease Longitudinal Data Repository
Protocol Status: Open for Recruitment
Trial Description: The purpose of this study is to create an anonymous database of patients with Inflammatory Bowel Disease (Crohn’s Disease and Ulcerative Colitis). The database will help researchers better understand the development and progression of Inflammatory Bowel Disease. Researchers can use the database to track the outcomes of certain treatments over time and to identify patients that may be eligible for future research.
Study Procedures: Participants will allow select de-identified health information regarding their Inflammatory Bowel Disease, such as medications and disease symptoms, to be added to the database. Participants may be asked about their current Inflammatory Bowel Disease symptoms during clinical visits. Participants also have the option of learning more about future studies on Inflammatory Bowel Disease.
Recruitment Information: Children and adults who have been diagnosed with Inflammatory Bowel Disease (Crohn’s Disease or Ulcerative Colitis).
Recruitment Contact Name: Sarah Weber
Recruitment Contact Phone: (857) 218-5098
Recruitment Contact Email: firstname.lastname@example.org
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”