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We believe our daughter is living a happy and healthy life at home because of the staff and the doctors within the CAPE program. Their care has been remarkable and we are forever grateful ––The Wiggin Family
Started in 2007, the Critical Care, Anesthesia Perioperative Extension (CAPE) and Home Ventilation Program is a comprehensive and longitudinal service for children with chronic respiratory insufficiency, technology dependence and related medical complexities. The program promotes high quality, coordinated care to assist families and improve the lives of children with long-term ventilator assistance. CAPE services are tailored to the individual patient, offering extensive home visits, outpatient clinics, and inpatient consultation to meet a wide range of needs. Our providers are also engaged in health services research and interventional studies to improve care systems and outcomes.
We help children with complex medical needs and their families get the care they need at home, including those who have had organ transplants or are living with complications of prematurity, neuromuscular diseases (e.g., spinal muscular atrophy, muscular dystrophy), acute neurologic injury and many other critical illnesses.
We believe that the long-term needs of children with complex conditions are best met at home. Working closely with each family’s primary care provider(s), we help create patient-centered medical homes – a model of continuous, comprehensive and coordinated medical care for children—and care plans tailored to each child and the medical practices caring for them.
CAPE providers help determine if, and how, short and long-term respiratory support can be of benefit. Services are intended to optimize your care at home and facilitate any hospital-based care, augmenting the Medical Home / primary care services:
Families of new patients can be relieved to know that the CAPE program will take care of your referral. Contact Maura Morrissey at firstname.lastname@example.org or 617-919-3685. She will take your child's personal information and schedule a consult to integrate your family in the CAPE program.
Existing patients who haven't maintained constant contact with the CAPE team can also contact Maura to schedule an appointment. Lauren Perlman, our Respiratory Therapist, will then be in touch to gather further details.
If your child finds him or herself in Boston Children's Hospital they can still be seen by the members of the CAPE team. Call Maura for more information.
For referrals (Monday through Friday): call 617-919-3685
For urgent matters or after hours: call our page operator (617-355-6369 #4321) and ask for the “CAPE doctor on call”.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”