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Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
On the day of surgery, your child will go to the Cardiovascular Inpatient Unit (8 East), on the 8th floor of the main hospital in Boston, at her scheduled time. Your child's pre-op nurse will greet you, admit your child and escort you and your child to an activity room to wait for surgery.
As time for surgery approaches, an operating room assistant will escort you and your child to the inpatient pre-operative holding area. Two adults may accompany your child while you are in this area, and you will meet the operating room nurse and anesthesiologist who will care for your child during the operation.
With inpatient admissions, many of the preparations are the same as same-day admissions, except that your child will already be in the hospital.
He may need an electrocardiogram, chest X-Ray, echocardiogram and blood work. You will meet with your child's cardiologist, cardiac surgeon, cardiac surgical resident, cardiology fellow and the cardiac anesthesiologist, and will be shown around the Cardiovascular Inpatient Unit (8 East), where your child will be admitted. You may also tour the Cardiac Intensive Care Unit the night before surgery.
The pre-operative information explained to your child will be geared to your child's developmental level and your comfort level. A Pre-Admission Program is run by the hospital's Child Life specialists on Wednesday afternoons. Please call 617-355-6470 for more information.
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