Critical Care, Anesthesia, Perioperative, Extension (C.A.P.E.) and Home Ventilation Program

Critical Care, Anesthesia, Perioperative, Extension (C.A.P.E.) and Home Ventilation Program | Overview

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Contact the CAPE Program

Patient of CAPE Program at Boston Children's Hospital
Mallory, C.A.P.E. patient at Boston Children's Hospital

Started in 2007, the Critical Care, Anesthesia Perioperative Extension (CAPE) and Home Ventilation Program is a comprehensive and longitudinal service for children with chronic respiratory insufficiency, technology dependence and related medical complexities. The program promotes high quality, coordinated care to assist families and improve the lives of children who need long-term ventilator assistance. CAPE services are tailored to the individual patient. We offer extensive home visits, outpatient clinics, and inpatient consultation to meet a wide range of needs.  Our providers also engage in health services research and interventional studies to improve care systems and outcomes.

Our goals for you

We help children with complex medical needs get the care they need at home. Our patients include those who have had organ transplants or are living with complications of prematurity, neuromuscular diseases (e.g., spinal muscular atrophy, muscular dystrophy), acute neurologic injury and many other critical illnesses.

The CAPE team helps children with complex medical needs and their families get the care they need at home. Patients typically seen by the CAPE team include those who have had organ transplants or are living with complications of prematurity, neuromuscular diseases (e.g., spinal muscular atrophy, muscular dystrophy), acute neurologic injury and many other critical illnesses.

Supplementing the medical home

We believe that the long-term needs of children with complex conditions are best met at home. Working closely with each family’s primary care provider(s), we create patient-centered medical homes – a model of continuous, comprehensive and coordinated medical care for children—and design care plans tailored to each child’s needs.

Our services

CAPE providers help determine if, and how, short and long-term respiratory support can be of benefit. Services are intended to optimize care at home and facilitate any hospital-based care, augmenting the medical home / primary care services:

  • Long-term primary respiratory/pulmonary care and healthcare coordination with families and primary care providers with 24 hours a day response
  • Consultation and support to families who are considering homecare of children requiring noninvasive respiratory care or transtracheal ventilator assistance
  • Inpatient collaboration with medical and surgical specialists
  • Transitional/discharge care planning to coordinate with community services, rehabilitation facilities, and other acute care hospitals
  • Home ventilator equipment and environment safety evaluations
  • Interface with home nursing, school/therapy staff, and equipment services
  • Social work support with assessment of psychosocial, financial & medico-legal issues, short-term crisis intervention counseling, and case management
  • Collaboration with palliative care services

In the News

August, 2016
There's No Place Like Home
AARC Times

March, 2016
Doctors revive house calls for children with serious illnesses 
STAT

April, 2016
Caring for the Ventilator-Dependent Children
The Physician Innovator

"We believe our daughter is living a happy and healthy life at home because of the staff and the doctors within the CAPE program. Their care has been remarkable and we are forever grateful. "

––The Wiggin Family
               
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944

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