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Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
Patients with tricuspid valve disease are often referred to Boston Children’s. In many cases, these patients were referred for other associated cardiac surgical conditions, including congenital tricuspid stenosis, tricuspid regurgitation and Ebstein's anomaly. Often, their tricuspid disease is repaired at the same time and through the same operation as the associated disease.
Between 2005 and 2011, we performed more than 400 operations that included a tricuspid valve repair, including more than 70 Cone operations in patients with Ebstein's anomaly since 2006.
Our techniques have continued to improve and, each year, the number of patients undergoing this operation has risen. We have seen excellent results in this group of patients. There have been very few re-operations for recurrent tricuspid valve regurgitation and nearly 100% survival.
Our advanced imaging techniques, including two- and three-dimensional cardiac echocardiography and cardiac magnetic resonance imaging (MRI), are extremely valuable for evaluating patients with tricuspid valve disease. These techniques are particularly important in patients with Ebstein's anomaly, as they provide an excellent “roadmap” that helps in preparing for surgical repair.
We are currently evaluating results of recent studies on patients with Ebstein's anomaly undergoing the Cone procedure. The results of this analysis may allow us to predict the optimal timing for surgery and determine when other procedures, such as a bi-directional Glenn procedure, may be beneficial.
At Boston Children's, we are helping to develop a clinical trial for a device that may be beneficial in reducing the amount of regurgitation in patients with HLHS who have had the Norwood and many who have had a bi-directional Glenn (BDG) or Fontan procedure.
Children born with hypoplastic left heart syndrome (HLHS) often develop significant tricuspid valve regurgitation, in which the blood flows backwards. This may contribute to increased sickness in these fragile patients. Many of these patients will benefit if their tricuspid valve can be repaired in a way that minimizes the associated regurgitation.
Conditions associated with tricuspid valve disease
Primary dysplastic tricuspid valve disease
Tricuspid regurgitation associated with
Pulmonary atresia/intact ventricular septum (PA/IVS)
Endocarditis involving tricuspid valve
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We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”