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Boston Globe: Split liver transplants save two lives
December 23, 2013
When Emma Lowney was diagnosed with jaundice a day after her birth last December, her parents assumed it would quickly vanish on its own like it did in Emma's older brother, Henry. Instead, Emma turned out to have a rare life-threatening liver disease called biliary atresia, and she recently celebrated her first birthday waiting for a liver transplant. Read the full story. To learn more about the Liver Transplant Program at Boston Children’s Hospital, click here.

 

Disabled baby denied heart transplant elsewhere, receives care at Boston Children’s
December 4, 2013
CNNHealth.com’s “The Empowered Patient” column profiles a family whose 5-month-old infant was denied a heart transplant at various other institutions before coming to Boston Children’s Hospital – reportedly because he had a disease they believed would leave him with mental and physical disabilities.  The grateful mother said, “the difference between Boston and all the other hospitals is the way they cared…and that they cared.”  Boston Children’s Amy Roberts, MD, is included in the story. The story was also reported by The Daily Mail , Fox News, The New York Post and Gawker.com. - See more at: http://www.childrenshospital.org/centers-and-services/centers/heart-center/heart-center-news#sthash.q4wljq9g.dpuf
Disabled baby denied heart transplant elsewhere, receives care at Boston Children’s
December 4, 2013
CNNHealth.com’s “The Empowered Patient” column profiles a family whose 5-month-old infant was denied a heart transplant at various other institutions before coming to Boston Children’s Hospital – reportedly because he had a disease they believed would leave him with mental and physical disabilities.  The grateful mother said, “the difference between Boston and all the other hospitals is the way they cared…and that they cared.”  Boston Children’s Amy Roberts, MD, is included in the story. The story was also reported by The Daily Mail , Fox News, The New York Post and Gawker.com. - See more at: http://www.childrenshospital.org/centers-and-services/centers/heart-center/heart-center-news#sthash.RH97Yr6m.dpuf

Disabled baby denied heart transplant elsewhere, receives care at Boston Children’s
December 4, 2013
CNNHealth.com’s “The Empowered Patient” column profiles a family whose 5-month-old infant was denied a heart transplant at various other institutions before coming to Boston Children’s Hospital – reportedly because he had a disease they believed would leave him with mental and physical disabilities. The grateful mother said, “the difference between Boston and all the other hospitals is the way they cared…and that they cared.” Boston Children’s Amy Roberts, MD, is included in the story. The story was also reported by The Daily Mail, Fox News, The New York Post and Gawker.com.


Disabled baby denied heart transplant elsewhere, receives care at Boston Children’s
December 4, 2013
CNNHealth.com’s “The Empowered Patient” column profiles a family whose 5-month-old infant was denied a heart transplant at various other institutions before coming to Boston Children’s Hospital – reportedly because he had a disease they believed would leave him with mental and physical disabilities.  The grateful mother said, “the difference between Boston and all the other hospitals is the way they cared…and that they cared.”  Boston Children’s Amy Roberts, MD, is included in the story. The story was also reported by The Daily Mail , Fox News, The New York Post and Gawker.com. - See more at: http://www.childrenshospital.org/centers-and-services/centers/heart-center/heart-center-news#sthash.RH97Yr6m.dpufDisabled baby denied heart transplant elsewhere, receives care at Boston Children’s
December 4, 2013
CNNHealth.com’s “The Empowered Patient” column profiles a family whose 5-month-old infant was denied a heart transplant at various other institutions before coming to Boston Children’s Hospital – reportedly because he had a disease they believed would leave him with mental and physical disabilities. The grateful mother said, “the difference between Boston and all the other hospitals is the way they cared…and that they cared.” Boston Children’s Amy Roberts, MD, is included in the story. The story was also reported by The Daily Mail , Fox News, The New York Post and Gawker.com. - See more at: http://www.childrenshospital.org/centers-and-services/centers/heart-center/heart-center-news#sthash.RH97Yr6m.dpuf
Disabled baby denied heart transplant elsewhere, receives care at Boston Children’s
December 4, 2013
CNNHealth.com’s “The Empowered Patient” column profiles a family whose 5-month-old infant was denied a heart transplant at various other institutions before coming to Boston Children’s Hospital – reportedly because he had a disease they believed would leave him with mental and physical disabilities.  The grateful mother said, “the difference between Boston and all the other hospitals is the way they cared…and that they cared.”  Boston Children’s Amy Roberts, MD, is included in the story. The story was also reported by The Daily Mail , Fox News, The New York Post and Gawker.com. - See more at: http://www.childrenshospital.org/centers-and-services/centers/heart-center/heart-center-news#sthash.q4wljq9g.dpuf
 

Kidney Transplant Program Receives Award

The Pediatric Transplant Center is honored to announce that The Department of Health and Human Services recently recognized our Kidney Transplant Program as a national leader in its field. The program received a Silver Level Award

based on measurements of the program’s performance in key areas including how quickly patients received a transplant after being placed on the waiting list, post-transplant graft survival rates and patient mortality rates while waiting for an organ to become available.  

Boston Children's Kidney Transplant Program was the only program in New England – adult or pediatric - to be recognized at the Silver Level. Its scores for transplant rate and patient mortality rate while on the waitlist stood out among the other programs. 

For information on this honor, visit our News Room

 

 

Improving Medical Adherence in Kids

Kristine McKenna, PhD, psychologist at Boston Children’s Pediatric Transplant Center is currently conducting research as part of a national study to better understand how mobile phone apps could be used to help adolescent transplant patients adapt to life post-transplant.

“We know that adherence is a major issue for teens and young adults which puts them at increased risk for graft [transplant] failure,” she says. "So we’re looking for new ways to help them manage their health, by focusing on technology and tools they’re familiar with.”

The app is still in the development stage, but McKenna foresees an adherence app that changes with the user, based on the users' age, adherence level and where they are in the transplant process.

McKenna and team will continue to work on the beta version of the app over the coming months with plans for continued feedback from Boston Children's adolescent transplant patients prior to it formally being launched.  

For the full story on this exciting new technology, read our blog post on Mckenna's work.

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The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
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