Heart Center Parker Bolton

LIke ThisLIke ThisLIke ThisLIke ThisLIke This

Parker's story

 Parker a few weeks after leaving Boston Children'sDuring a routine ultrasound I had in the 20th week of my pregnancy, I learned that my soon-to-be-born son, Parker, would be born with a complex congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS).

Because of the severity of Parker’s condition, our doctors recommended an induced birth in Boston so he could be immediately rushed to Boston Children’s Hospital Cardiac Intensive Care Unit (CICU).

Parker’s first 24 hours of life were so unstable that doctors weren’t sure he’d make it. His condition was so severe that even as his parents we weren’t allowed to see him in the cardiac ICU until they could stabilize him with an emergency catheterization.

Parker had to undergo his first heart intervention at just a few hours old. Then, at only 7 days old, he underwent his first open heart surgery. His chest remained open after the surgery because his heart was so swollen; finally it was closed on Christmas Day. We spent that Christmas hoping for the best, but he was not adjusting well to the change.

Parker six weeks after his second open heart surgeryDue to Parker’s condition, doctors said he required either three open heart surgeries or a full heart transplant. We choose the three surgeries because Boston Children’s had a reputation of successfully performing surgery in that way.

Originally, Parker was supposed to come home between the first and second stage of his heart operations, but unfortunately he didn’t do well after the first surgery and needed to remain hospitalized with the support of the hospital equipment and medicine in order to survive to the second stage.

Parker had the second open heart surgery on March 3, 2008. This was one of the earliest stage II surgeries performed by cardiac surgeon Dr. Sitaram Emani, who preformed Parker’s operation.

Thanks to everyone at Boston Children’s, after nearly 15 weeks in the hospital, Parker was finally discharged and able to come home for the first time in his life.

Parker is now home and he receives eight different medications, 16 times throughout the day. His next open heart surgery will be sometime between Thanksgiving and Christmas of this year. Eventually, Parker may need a heart transplant, but we are hopeful this isn’t for years to come.

 A bright future requires eye protectionBecause of Parker’s condition we have learned to cherish each and every moment. Life is no longer about milestones, but about the moments. The difference between good days and bad days no longer seems so important; we are just thankful for the days.

We are forever grateful for the first class care our son has received at Children’s; we truly felt he couldn’t have been in better hands.

The entire staff was amazing, and the dedication I felt from Dr. Sitaram Emani and Dr. David Brown goes beyond words. We were at Children’s for 95 straight days and I felt like they were always available to us for assistance, guidance or to answer our questions. They never made me feel rushed or that my concerns weren’t valid.

Seeing their dedication to and passion for helping children made me want to make sure all future parents of children with heart conditions are aware of the amazing care their baby can receive from Children’s Hospital Boston.

When I first received Parker’s diagnosis of HLHS I had no idea what a congenital heart defect was, never mind what HLHS was. When I left the doctor’s office that morning in tears, the only thing I had was a tissue with hypoplastic left heart syndrome written on it.

 Casey and her son Parker after a 15 week stint at Boston Children'sThrough our personal journey I’ve learned there just isn’t enough awareness or funding for research for CHDs. I’m amazed that the cardiologist we first saw in New Hampshire who diagnosed my baby couldn’t provide any information about his condition. I think most of my fears stemmed from the lack of education on the CHD and the fear unknown.

As a result, I have made it a life goal to raise awareness for CHDs so other expectant parents aren’t as lost as I was. I’ve contacted many people, medical professionals and organizations in attempts to open the lines of communication about the dangers CHD.

Thanks to work I’ve done with New Hampshire Governor John Lynch, this past February 14 was declared CHD Awareness Day in my home state. Currently, I’m working with New Hampshire State Representative Lynne Blankenbeker on having a pulse oximetry test (which could help detect signs of CHD in babies and save lives) added to medical screenings of all newborns born in New Hampshire.

While I’m glad to have the opportunity to be a part of the fight against CHD, I am most thankful for the work and dedication of Dr. Emani, Dr. David Brown and the entire staff at Children’s Hospital Boston. They have given my son a chance at life, and I could never fully repay them— I am truly blessed to have Parker and my thanks goes out to Children’s for keeping him in my life.

Request an Appointment

If this is a medical emergency, please dial 9-1-1. This form should not be used in an emergency.

Patient Information
Date of Birth:
Contact Information
Appointment Details
Send RequestIf you do not see the specialty you are looking for, please call us at: 617-355-6000.International visitors should call International Health Services at +1-617-355-5209.
Please complete all required fields

This department is currently not accepting appointment requests online. Please call us at: 617-355-6000. International +1-617-355-6000.

This department is currently not accepting appointment requests online. Please call us at: 617-355-6000. International +1-617-355-6000.

Thank you.

Your request has been successfully submitted

You will be contacted within 1 business day.

If you have questions or would like more information, please call:

617-355-6000 +1-617-355-6000
close
Find a Doctor
Search by Clinician's Last Name or Specialty:
Select by Location:
Search by First Letter of Clinician's Last Name: *ABCDEFGHIJKLMNOPQRSTUVWXYZ
More optionsSearch
Condition & Treatments
Search for a Condition or Treatment:
Show Items Starting With: *ABCDEFGHIJKLMNOPQRSTUVWXYZ
View allSearch
Locations

Support Boston Children's Heart Center

  • Heart Center at Boston Children's Hospital

    Thank you, CHOB!!! Gabe is 10. Born with a form of HLHS and DS. In 2003 very few children with this dual dx survived for more than a few years. Dr. Del nido found a way. There are no words to express our gratitude. Never give up hope. Pray for direction.Read More

  • Heart Center at Boston Children's Hospital

    Our son Hayden was born 5/12/14 with undiagnosed Transposition of The Great Arteries. He was transferred to Boston Children's and his team of doctors saved his life. He was very sick leading up to his Arterial Switch and... Read More

  • Heart Center at Boston Children's Hospital

    One year ago our little Jonah went in for open heart surgery. He is now 15 months old and is a happy, healthy little boy. We can't thank Dr. Emani and the rest of the crew from the Heart Center at Boston Children's Hospital enough! Little Jonah thanks you too!Read More

  • Heart Center at Boston Children's Hospital

    Michael has two birthday's every year now; born on April 14, and re-born on June 3, 2011. It's been three years now since his heart surgery at Boston Children's Hospital. Michael is doing incredibly well, even ...Read More

  • Heart Center at Boston Children's Hospital

    You would never know our little heart warrior Reece was just at BCH undergoing his 8th heart cath. Thank you to all the doctors, especially Drs. Lock and Marshall, for making sure our little miracle is always smiling!Read More

Contact the Heart Center

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO
Close