Heart Center Heart Heroes

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What's a Heart Hero?

"As a Boston Children’s Hospital Heart Hero, I will keep making a difference ... until every child and adult with a congenital heart defect is well."

This is the promise our Heart Heroes have made—and kept—in their personal fight against congenital heart disease.  

We believe that everyone who has a heart defect, or has made it their mission to better the lives of those who do, is a hero. These heroes deserve to be celebrated for their strength, dedication and achievements.

Boston Children's Heart Heroes include:

  • Patients
  • Family members
  • Doctors
  • Nurses
  • Other hospital staff
  • Support group leaders
  • Bloggers and journalists
  • Legislators and community advocates

Read the amazing stories of some of our Boston Children's Heart Heroes:

Heart Patient: Parker Bolton

Parker BoltonParker’s first 24 hours of life were so unstable that doctors weren’t sure he’d make it. His condition was so severe that even as his parents we weren’t allowed to see him in the cardiac ICU until they could stabilize him with an emergency catheterization. Parker had to undergo his first heart intervention at just a few hours old. Then, at only 7 days old, he underwent his first open heart surgery. His chest remained open after the surgery because his heart was so swollen; finally it was closed on Christmas Day. We spent that Christmas hoping for the best, but he was not adjusting well to the change. Read more about Parker Bolton's journey.

 

Heart Patient: Lorraine Sweeney

lorraine sweeneyWhen the first fetal cardiac surgery was performed at Boston Children's Hospital in 2001 – entering Jack Miller’s heart through his mother’s abdomen and opening blood flow – the world was stunned. But more than 60 years earlier, another operation was equally game-changing. It was 1938, a time before heart-lung bypass, when ether and chloroform were only starting to be supplanted by more controllable anesthetics, when tinkering with the heart or even opening the chest were seen as dangerous and taboo. Read about Lorraine Sweeney's fetal cardiac surgery at Boston Children's Hospital in 1938.

 

Heart Patient: Avery Toole

Avery TooleAvery Toole was born with hypoplastic left heart syndrome (HLHS), one of the rarest and most devastating congenital heart defects. Watch Avery Toole's story.

 

 

  • Heart Center at Boston Children's Hospital

    Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
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  • Heart Center at Boston Children's Hospital

    If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
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  • Heart Center at Boston Children's Hospital

    5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
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  • Heart Center at Boston Children's Hospital

    1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
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  • Heart Center at Boston Children's Hospital

    Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
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  • Heart Center at Boston Children's Hospital

    This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
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The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944

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