Heart Center Heart Heroes

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What's a Heart Hero?

"As a Boston Children’s Hospital Heart Hero, I will keep making a difference ... until every child and adult with a congenital heart defect is well."

This is the promise our Heart Heroes have made—and kept—in their personal fight against congenital heart disease.  

We believe that everyone who has a heart defect, or has made it their mission to better the lives of those who do, is a hero. These heroes deserve to be celebrated for their strength, dedication and achievements.

Boston Children's Heart Heroes include:

  • Patients
  • Family members
  • Doctors
  • Nurses
  • Other hospital staff
  • Support group leaders
  • Bloggers and journalists
  • Legislators and community advocates

Read the amazing stories of some of our Boston Children's Heart Heroes:

Heart Patient: Parker Bolton

Parker BoltonParker’s first 24 hours of life were so unstable that doctors weren’t sure he’d make it. His condition was so severe that even as his parents we weren’t allowed to see him in the cardiac ICU until they could stabilize him with an emergency catheterization. Parker had to undergo his first heart intervention at just a few hours old. Then, at only 7 days old, he underwent his first open heart surgery. His chest remained open after the surgery because his heart was so swollen; finally it was closed on Christmas Day. We spent that Christmas hoping for the best, but he was not adjusting well to the change. Read more about Parker Bolton's journey.

 

Heart Patient: Lorraine Sweeney

lorraine sweeneyWhen the first fetal cardiac surgery was performed at Boston Children's Hospital in 2001 – entering Jack Miller’s heart through his mother’s abdomen and opening blood flow – the world was stunned. But more than 60 years earlier, another operation was equally game-changing. It was 1938, a time before heart-lung bypass, when ether and chloroform were only starting to be supplanted by more controllable anesthetics, when tinkering with the heart or even opening the chest were seen as dangerous and taboo. Read about Lorraine Sweeney's fetal cardiac surgery at Boston Children's Hospital in 1938.

 

Heart Patient: Avery Toole

Avery TooleAvery Toole was born with hypoplastic left heart syndrome (HLHS), one of the rarest and most devastating congenital heart defects. Watch Avery Toole's story.

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  • Heart Center at Boston Children's Hospital

    Thank you, CHOB!!! Gabe is 10. Born with a form of HLHS and DS. In 2003 very few children with this dual dx survived for more than a few years. Dr. Del nido found a way. There are no words to express our gratitude. Never give up hope. Pray for direction.Read More

  • Heart Center at Boston Children's Hospital

    Our son Hayden was born 5/12/14 with undiagnosed Transposition of The Great Arteries. He was transferred to Boston Children's and his team of doctors saved his life. He was very sick leading up to his Arterial Switch and... Read More

  • Heart Center at Boston Children's Hospital

    One year ago our little Jonah went in for open heart surgery. He is now 15 months old and is a happy, healthy little boy. We can't thank Dr. Emani and the rest of the crew from the Heart Center at Boston Children's Hospital enough! Little Jonah thanks you too!Read More

  • Heart Center at Boston Children's Hospital

    Michael has two birthday's every year now; born on April 14, and re-born on June 3, 2011. It's been three years now since his heart surgery at Boston Children's Hospital. Michael is doing incredibly well, even ...Read More

  • Heart Center at Boston Children's Hospital

    You would never know our little heart warrior Reece was just at BCH undergoing his 8th heart cath. Thank you to all the doctors, especially Drs. Lock and Marshall, for making sure our little miracle is always smiling!Read More

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The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO
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